Hi my name is simon and ive only just joined so please bear with me :)…had ms since 2007 and now things have really started to happen!! so any advice etc would be gratefully recieved.
Hi Simon, welcome to the site, theres some great people on here full of advice so im sure you will be sticking around.
Kelly
Hi Simon,
What do you do just now, and how is the MS affecting you? I go for hyperbaric oxygen once a week and reflexology once a fortnight, and I’ve just started taking LDN - it’s early days (only started on Fri), but my hopes are getting higher each day.
Luisa x
Thanks for the welcome :)… I was diagnosed in 2007 since then it only been little things ie numbness,pins/needles, but just latley my left side of my face from my chin to my head has been numb, also balance and co-ordination has been terrible ive had 2 episodes in the last month which included vertigo which i would not wish on anyone spent 4 days in bed could’nt eat drink ect. Im seeing a new neurologist next week as there does not seem to be much support where i live so its been alittle difficult. sorry to waffle on lol.
hi simon,
welcome on board and you’re not waffling , we all come here for information, advice, support and understanding from other people with ms, whenever we feel the need to vent this is the right place too, so, go for it!
before going to see your new neurologist, make a list of all the things you want to tell him/her and the questions you want to ask, it’s way too easy to walk away from an appointment and realise that you’ve missed bits out. if you have someone available who you’d be comfortable taking with you, it can be quite handy having an extra set of ears as there can sometimes be a lot of information to take in. does your area have any ms nurses and, if so, have you been assigned one? it might be useful to keep a diary of new symptoms starting/stopping to refer to before neuro appointments.
i hope you keep coming here, it’s a really great community and there’s ALWAYS someone who ‘gets’ each topic/symptom/worry/laugh/etc.
take care,
wendy
Hello, Simon, and welcome.
Alison
x
Hi Simon, and welcome to the site
I found this place last year when all hell started breaking loose for me, MS-wise. It’s been a wonderful support group and there’s always someone around to give some advice.
As Wendy says, do make a list and take someone with you - extra ears, eyes and mouth can be very handy! In my experience it isn’t a good idea to just hand the list over (neuros have a habit of not reading them properly, stuffing it in your file and then just going back to whatever it was THEY were talking about!) so talk through it and only then hand a copy over (don’t hand your only copy over - keep it for your own record).
If this is a new neurologist, he/she will probably want to know your whole history, so you might want to make notes to take with you about that too.
Do your best not to leave without contact details for an MS nurse. They can be very very helpful.
Good luck, and welcome aboard!
Karen x
Hi thanks for all the welcomes again!! lol… Since i was diagnosed i have been in limbo as no one knows exactly what stage i am at. Hopefully this will be resolved later next week. As regard to ms nurses we dont have one here and the nearest one is in the next town but they dont have the funds to come to my area??. if im being honest after being on here for a couple of days ive found more info than i have since i was diagnosed. I feel alittle let down by local doctors because they dont seem to understand when your not well. all they can advise is to painkillers ect and ride it out. I had to kick up a fuss to see a new neurologist which i had to do off my own back, as i original one i saw was only interested in when i last had a full blown episode and then sent me on my way!! he would not listen to me explaining what problems i was experiencing, i think i was in there for around 10mins which i think is disgracefull. Since then i have not seen anyone.
Hi thanks for all the welcomes again!! lol… Since i was diagnosed i have been in limbo as no one knows exactly what stage i am at. Hopefully this will be resolved later next week. As regard to ms nurses we dont have one here and the nearest one is in the next town but they dont have the funds to come to my area??. if im being honest after being on here for a couple of days ive found more info than i have since i was diagnosed. I feel alittle let down by local doctors because they dont seem to understand when your not well. all they can advise is to painkillers ect and ride it out. I had to kick up a fuss to see a new neurologist which i had to do off my own back, as i original one i saw was only interested in when i last had a full blown episode and then sent me on my way!! he would not listen to me explaining what problems i was experiencing, i think i was in there for around 10mins which i think is disgracefull. Since then i have not seen anyone.
[quote=“sharon11”]
Hi Simon and welcome!
You have my sympathy regarding the vertigo. It was one of my first symptoms before diagnosis back in 2004 and i still suffer from it in varying degrees. The vertigo truly is awful.
You will find loads of support and advice on here Simon.
Nice to meet you!
Sharon x
[/quote] Hi nice to meet you :)…The vertigo spanned from an ear infection which i quite oftenly get in the same ear. To be honest im dreading getting it again as its very scarey. also depression is a really big problem too which im on meds for that.
[quote=“sharon11”]
Hi Simon and welcome!
You have my sympathy regarding the vertigo. It was one of my first symptoms before diagnosis back in 2004 and i still suffer from it in varying degrees. The vertigo truly is awful.
You will find loads of support and advice on here Simon.
Nice to meet you!
Sharon x
[/quote] Hi nice to meet you :)…The vertigo spanned from an ear infection which i quite oftenly get in the same ear. To be honest im dreading getting it again as its very scarey. also depression is a really big problem too which im on meds for that.
Hi Simon.
Take care.
Chris R.
I. El. (Eng). (Rtd).
I know its going to be a bad day when I get out of bed and miss the floor, today is such a day.
Hello Simon,
The very best of welcome to you. Think of yourself as ‘a fellow sailor’ as here we’re all in the same boat.
Yours,
Moira