Scared

Hi, I am very scared and my Dr have made an appointment to see a neurologist ,I really need to talk with someone about MS I woke up this morning terrified. I have been feeling fatigued and run down for nearly two years now and i don’t know what way to turn. I feel desperate will someone please email me at [Edited - please use PM facility] Thanks Nick

Hello Nick. Hope someone’s contacted you. This is a scary time,hopefully you won’t have too long to wait before seeing neurologist. There is a helpline you can ring on this website in the morning or the samaritans if you feeling really desperate and need someone to talk to. The samaritans number is; 08457 90 90 90

hi nick

don’t waste time worrying because you never get that time back.

now if it turns out to be ms there are a lot of options for you.

not just the disease modifying drugs but also things like hyperbarric oxygen therapy (HBOT) and LDN (low dose naltrexone)

maybe a bit of research into these will give you less time to worry.

HBOT can be accessed at a ms therapy centre as well as loads of other therapies.

LDN can’t be had on the NHS but it only costs about £18 per month.

good luck

carole x

Thanks for your time I am really fearful ,i have been told by one DR that it is highly unlikely that i have MS i am really in need of information and hope i can talk to one of you?

Again thanks for your time i am really inj need of some advice, i guess i need a chat:( Is it possible to talk to anyone on here?

I Suffer from health anxiety , But this is real i have been waking up feeling like i have a hang over for over a year, My Dr say its because i don’t stop thinking i feel so fatigued , tingling in my hands and feet and i wake up every night with numb hands and feet! My mind is very fogy, I do feel very lonely I have nothing and I was counting on a job as a skipper, i can’t go looking and feeling like this, right now i feel like my life is over…

Nick X

H

Hi,

I forgot to mention that i do have diabetes.I really feel for every one out here and hope you all Understand. sorry for acting so scared this really has me.

Hello Nick. I’ve read the private message you sent me. I don’t wish to be unkind but you need professional help. Please ring this website tomorrow for advice, or the samaritans number I gave you above. Why not contact your gp in the morning. Nick!! I’m happy to talk to you openly on this forum…there are lots of lovely people on here happy to support you. Please take the advice I’ve gven you and get the correct help. Take care xxx

Hi, sounds like you need far more support for your mental health, if your anxiety is affecting you so badly. Do you have access to therapy? Talking things over face to face can make a big difference, and would stop you feeling so isolated. Your symptoms could be caused by numerous things- severe panic attacks cause tingling, but so does mismanaged diabetes, so you do need doctors to be honest with you, as long as you are being honest with them too. Have you tried a mental health forum too? I straddle both physical and mental health forums (i’m bipolar) so its good to get differing perspectives from people who understand xx

Thanks for your reply, i am clearly unwell I have huge bags under my eyes and feel so ill, my diabetes is under control! I just really need to talk to someone on the phone. I feel so very alone. Again thanks for your support…

Nick!! Ring this website and you will be able to talk to someone. Think again about contacting Samaritans. All the best xxx

I’m starting to wonder nick why your asking one of us to ring you…you sent me a pm. I’ve advised you who to contact. Is there some reason why you can’t do this Nick?

i am just very scared and panicking its that simple i am trying to find some solace i have no family and i have lost all my friends over this, no one has understood. I am a sailor and i should not be in the UK , what i mean by this is i have got stuck in a bad situation…I never [planned for this, sorry to have ask for so much so soon…

Look i feel like i can’t think! everything is fogy and the only relief i get is when I do hot Yoga which incidentally might be cause or may have speeded up this problem. I feel like i am under the ice and the yoga is a breath of air. that’s how i feel! I wanted to talk to someone who is suffering from this condition, trying to see what it feels like, I have never been good a waiting for things like this! I hope you all can understand. Thanks For your time. x

I can understand you feeling scared Nick…I was only diagnosed in august.

Me or anyone else on this forum ringing you will not help you to feel any better. You need some professional help Nick.

Chat all you want on here and I’ll be happy to read what you have to say and reply. I wasn’t trying to shut you out, just trying to guide you to the right help.

Your GP as made an appointment with the neurologist so thats good isn’t it?

Take care, xxx

Hi,
Thanks for your reply I still have not seen the dr and have a few questions.
Is it conman to wake up feeling like i have had no sleep?
It’s like that every morning, i wake i and feel horrible feels like i have a hangover.
I keep waking at night with numb hands and feet really scary. And now i am noticing in the mornings a loss of balance when I walk through town I have to avoid busy places but I have been on pregablin. I am sorry to bother you all i am just so scared.
Also i should mention that i have been doing hot yoga this seems to get rid of a lot of symptoms.
Thanks for your time Nick

Hi,
Thanks for your reply I still have not seen the dr and have a few questions.
Is it conman to wake up feeling like i have had no sleep?
It’s like that every morning, i wake i and feel horrible feels like i have a hangover.
I keep waking at night with numb hands and feet really scary. And now i am noticing in the mornings a loss of balance when I walk through town I have to avoid busy places but I have been on pregablin. I am sorry to bother you all i am just so scared.
Also i should mention that i have been doing hot yoga this seems to get rid of a lot of symptoms.
Thanks for your time Nick