This forum was just so helpful before seeing my Neurologist I thought I would contact you as yet again I am in the dark.
I have been having terrible headaches, was sent for an MRI scan which showed suspected MS. I eventually got to see a Neurologist yesterday who showed me the scan which had lots of white patches over the brain and told me this was one sign of MS. We then went through my history and as I had optic neuritis in 2000 and tingling legs for years he said I had had relapsing remitting MS now for 13 years! Quick on the uptake aren’t I?? He also told me there are new treatments out there but only for new cases of MS.
He gave me this news and went back into his office - I assumed I would then get a chat about how I handle this - didn’t want a hug just some advice. But no, the nurse said that he had another patient and would see me again in another 4 months. I’ve booked an appointment with my GP for tomorrow but just wondered if anyone out there had experienced the same situation.
I’ve got four kids at home and a very panicky husband - any help would be really appreciated.