Hello everyone, I’ve got my first doctors appointment on Saturday and don’t know what to expect.
I’m really concerned that what was initially thought was long covid is actually MS. My sister was diagnosed with MS five years ago. I’m a 52 year old female and had covid in March 2000, but I’m getting worse, not better and its been nearly two years since I caught the virus. My symptoms are extreme fatigue, awful pain, especially in my back, worsening mobility (I have to use a mobility scooter), numb and tingling toes - I can’t feel them at all. My eyesight has drastically declined recently, everything is blurry, I have a vitamin D deficiency. My legs have started to tremor. I have worsening bladder problems, the frequency is ridiculous and even though I have an en-suite there have been times where I’ve not made it in time (embarrassing) and my bowels are either one way or the other. I am sometimes sick after eating, not heartburn but more like I’m not managing to digest food and am full of horrendous gas, both ends, and the next day won’t be able to get off the loo. I’m bedbound most of the time, getting a bath leaves me exhausted. I’m extremely unsteady on my feet, my legs shake and I can’t support myself for more than a few minutes, leaving me in severe pain in my back and legs. My hands shake, using cutlery can be difficult as food falls off my fork before I’ve got it to my mouth. I’m permanently dizzy, have vertigo. I have terrible brain fog, can’t concentrate and my children have to constantly remind me about everything.
Most of these symptoms have got worse over the last twelve months and I’m doubting it’s long covid because of that. I have involuntary leg spasms at night sometimes.
My doctor, and I just assumed it was long covid and I’ve just been left to get on with it, but initially it was just chronic fatigue but with all these symptoms and the sibling connection I think it’s time to have investigations. To be fair to my GP she isn’t aware of most of my most recent symptoms. I’ve been putting off telling her.
What should I expect? Will I be taken seriously?
Sorry for such a long post and thank you for reading.
I’ve also had severe cold urticaria for twenty five years, after I was given painkillers which I was allergic to after the birth of my eldest child.
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Hi there…mmmm, there is a lot going on. Long covid can be blamed for some things, but yes, it is time to investigate the cause for all your symptoms.
I think you should let your GP know about everything. The more you tell them, the better chance they have of helping you.
Hopefully, you will be referred to a neurologist.
Best wishes
Boudsxx
Hi Bouds,
Thank you so much for the reply, I really appreciate it. I’ll write it all down so I don’t forget anything when I speak to my GP on Saturday.
Thanks again xx