Hello. I’m not diagnosed with anything yet but I’ve been having strange symptoms for almost 4 years now. It started with what seems to be something like an MS hug one day along with anxiety/depression that came on overnight for no reason. Then started getting very tired and hand tremors. I had low vitamin D and was given a supplement for that which helped the tiredness some but new things kept coming…strange feeling in my head, body jerking, numbness it part of my hand, weak heavy legs, etc. These came and went for about 2 years but were fairly mild for the most part. Then I had the flu and when I started to get better I noticed my legs seemed off, they would burn when I walked and just felt funny. It came and went for a couple months, then seemed to get better until one afternoon when the muscles in both legs suddenly got tight and it’s never went away. I assume its spasticity, it’s worse after sitting for awhile and when getting up in the morning or standing too long. Moving helps as long as I don’t overdo it. 
This stayed about the same with some minor ups and downs until last year when I had covid and then my right leg got tighter so that I can’t bend and lift it when I walk (but I can bend it to go up stairs or even step over something 
).
I’ve been to a few doctors through this but none of them will take me seriously and only want to put me on an antidepressant. The doctor I’m going to now did send me to a neurologist for an EMG and nerve conduction study which was normal. The neurologist told me I’m obviously not walking right and he thinks it could be something with my central nervous system. He seemed concerned and told me he would recommend to my doctor that I come back for a full neurological exam but my doctor told me at my next appointment that he thinks its coming from my back even though I’m not really having any back pain and prescribed me an anti inflammatory which is doing nothing. I’m feeling so lost and confused right now. I don’t know if I have MS but its the only thing I’ve been able to find that seems to match a lot of my symptoms. I feel like the neurologist was interested in helping me figure it out but my doctor doesn’t feel its necessary to give me another referral. Has anyone been in this kind of situation before and what would you recommend? I’d just like to finally know what’s wrong with me. Sorry for the long winded story.
Given your symptoms and the mixed responses from doctors you should start documenting your symptoms carefully and continuing to advocate for yourself can help ensure you get the thorough evaluation you need
Thanks. Maybe I need to write it all down so I don’t forget everything. It’s hard to get a doctor to spend more than 5 or 10 minutes with you so it’s hard to explain everything to them.
Have you gotten an MRI? Imaging would help if you can get it.
I haven’t yet. My mom thinks that because of our insurance he has to try more conservative things first. However my sister recently hurt her back and the same doctor told her that he would order her an MRI if the pain lasted 6 weeks. He knows that I’ve had this problem for a couple of years so I’m guessing he just doesn’t think it’s necessary.
I am not sure of your financial status, but I had to pay for my own MRI out of pocket after 3 years of symptoms with no answers.
This MRI has been critical in helping me get answers. I highly recommend if it all possible. Wish you the best of luck!
That’s something to consider anyway…thank you!