Hello I’m new here. I got diagnosed last week after seeing my MRI results on my NHS app. Had no contact from GP or neurologist who referred me due to migraines. Nothing. All GP could say was sorry you had to find out like that. Sent to the hospital and had a neurologist confirm. I know nothing about MS and so am pretty scared😬. Don’t know what to read, what is correct information and what isn’t. I was diagnosed with long covid in December after catching it a year earlier and being sick ever since😢 migraines, aching body, fatigue, insomnia, difficulty breathing, numbness and tingling. everything. Numerous hospital visits to A&E walk in and by ambulance and every visit told my vitals are all good and sent home. Most recently Unable to walk in a straight line and falling over, legs feeling heavy. I’m now waiting for the referral made to the specialist MS clinic.
Hi please do not be scared although it seems scary you have to stay positive, it just means that you may have to do some things differently and there are different types of ms.
Unfortunately everyones mind runs riot its understandable just take your time do things you enjoy to distract yourself.
Look after yourself with diet exercise when you feel like it and speak to someone who you feel you can.
There are books on amazon that can explain ms i got one ms for dummies as it clearly explained things and when you finally get your appointment different medication treatment options maybe be offered i hope this helps there are alot of people that suffer with ms you are not alone and there are many symptoms kind regards carol
Hello and welcome on board the journey. Im at the beginning myself and just at the referral stage (long story of private v NHS).
I chose to tell my work colleagues and friends as most asked why I was out of breath and wobbly/clumsy when I should be reasonable fit and to be honest, I need to sit a lot and rest (unless Im napping) so it was easier to try and explain.
Thank you so much Caz45 for the advice and suggested reading. I will be ordering. Thanks again. X
Hi no problem we are all here to support and help each other kind regards
Hi dsw. I don’t envy you one bit - long Covid and MS diagnosis. I had Covid that took about a year to get over - basically just weak and whacked all the time.
Anyway, to practical things. If it hasn’t happened already then you will be given options for MS Treatments. It’s a good idea to learn about the various drugs/ treatments. The MS Society’s website is as good as anything for learning about MS and the drugs/treatments as is the MS Trust’s site. I also make use of the website of ‘Overcoming MS’ which also gives suggestions on helping you deal with MS through diet, exercise, mindfulness/ meditation plus of course whatever treatment/ drug you are on.
I was diagnosed 18 years ago . Now have trouble walking for more than 10-15 minutes but apart from that and finding that when I need to pee I do need to get to the bathroom quick, I’m not doing to bad. I was put on Avonex injections and I do also follow recommendations on diet etc (Avonex is one of the older Treatments and the various recently developed ones are more effective).
Take care. Happy to answer any questions you might have
Yes I’ve told a couple of people at work because the first time I had issues with balance and tripping they noticed I was walking funny. They knew I was sick before with the long covid because they had to call an ambulance once because I was having breathing difficulties.i am worried how this could affect my work In the future as my job calls for me to visit Yong care leavers around the country. It is definitely the walking that I’m worried about at this point. I feel unsafe walking anywhere. But yes. Thanks for responding to my post
Thank you so much for your response to my post. You and others are making feel a bit more at ease. X