My other half reached out to a few places and the MSsociety suggested i posted here. Apologises if this is the wrong place, i don’t know what to say or where to post.
Starting in Janary I got daily headaches and aching, sometimes pain in my right hand. Went to my GP after 2 weeks (14th Jan) and was told it’s poor posture having been working at home, go get some physio which I did. That helped the arm, not the head so back I went and was told the same thing.
End of March I got a nasty tooth abcess, Sunday morning it was a little sensitive and by Tuesday the left side of my face was ballooned up, the pain was unbearable and I had temperature. Got put two lots of antibiotics, one really strong for 4 days and a weeks course of milder ones while they did the work. Following this actually was pretty good, much reduced headaches and not a peep from my arm. In June the pfyser caused some leg aching like i’d run 100 miles, but then in July back came the headache.
So I booked myself to see a private consultant, then had a private MRI. While we waited he said it was probably chronic Migraines, put me on Amitriptalyine. That drug has it’s pro’s and con’s, its helped the headaches but my balance is shot.
Results came as a suprise, 11 lesions with one 19mm in the “deep white matter left frontal lobe” and report said “I think suggestive of demyelinating disease, differential other inflammatory, ischaemic and vasculitic aetiologies”. Consultant said “it’s possibly MS”, drew me a pretty picture of an up and down chart, let me ask some basic questions and then said goodbye, pretty suprised he didn’t shout “don’t forget to pay my invoice” as i went.
Got given a letter by the receptionist and took it to my GP for referral on NHS, that was a month ago nearly and i’ve heard nothing. Did follow up with my GP surgery, the receptionists attitude was like i’d run over her dog and she said “it’s being processed” and “they NHS are not seeing urgent cases at the moment due to backlog”, I said goodbye then as I couldn’t take her attitude problem.
As I’m sure alot of people do I started digging online then and i’ve scared myself witless. To top it all off I had a nasty chest infection couple weeks ago which stopped me going to karate training and as it eased decided to do some press ups (i’d not done any for >10 months) to feel like i was doing something. My old friend the right hand/arm pain has returned now, which further adds to my worry/concern.
I’m struggling to cope to be fair. 14th January I found out I passed my professional qualification i’d spent 10 years getting and thought life was about to begin, i could (and did) take up music, join a martial arts, both of which i’d wanted to do for years. Now I feel like theres no point, odds are i’ll never hit black belt so why bother. All i can think about is losing my mobility, what it’ll mean for my work/life and how my partner will cope if she sticks around, when i’d not blame her for leaving.