I have the hug 24/7/365 in the left side of my chest and have for four years. I’ve used Cocoldamol initially, dreadful constipation and then Amytriptyline to help particularly at night but haven’t slept great in that time.
Ive recently investigated and am now using CBD Oil. This is a 100% legal in the U.K. It’s now made under licence and is a Cannabis based product without the THC. There is a closed FB group where you can get more information.
Naturally you need to be circumspect where you buy this. I buy from CBD bros, based in Suffolk. It has revolutionised my sleep and allowed me to have better sleep than I had for years. Previously I have smoked Cannabis to try and get some relief but I stopped as it’s illegal and smoking is rubbish for us as MSers.
Its not cheap I use four drops of the white edition Cannabis oil - £60 for 10 ml (200 drops or 50 days supply) but it’s really helped me.
If you’re interested please investigate for yourselves
I’m pleased to read you’ve found something which helps you.
Like you, I suffer the Hug around my left side. It troubles me much more at night, or maybe I just notice it more then. I’ve been using Gabapentin for 3 or 4 years now and find it a great help, my awareness of the hug is much reduced a lot of the time, but not always. So, maybe it’s time to think about trying something else.We each have to find what works for us.
I gave Amitriptyline a try but found myself walking around like a zombie, so that had to go.
How do the medics rate CBD oil? Has anyone here discussed it with their neuro?
I too have smoked cannabis, but it was back in the sixties, long before I had MS. I didn’t get on with the stuff at all and never understood what people saw in it, so quickly packed up - and fifty years later have no intention of trying it again, legally or otherwise.
Having Peripheral Neuropathy as well as MS, I get plenty of intensely sharp stabbing pains. I take Gabapentin to treat these pains, also the hug, stiff legs and cramps.
The drug reduces the frequency of the symptoms, and usually the intensity of the pain, but not quite always.
Prescribed by my neuro, I gradually increased the dose until it became effective, which is quite a high dose. The higher the dose, the more effective the drug became, however, there is for me just one side effect - impotence. So I reduced the dosage slightly to deal with that.
The drug has been fairly successful for me, but I think that, over time, it has become a little less effective. Now, for an obvious reason, I don’t want to increase the dose again, so maybe it’s time for a change.
My neuro offered me viagra to deal with the side-effect, but I’m not sure about taking one drug to counter the effect of another, hence the slightly reduced dosage, which thankfully worked.
thanks for your openness that really helps, so one good turn…
Ive lost some of my mojo since dx,
my quote is
“One good thing about MS, you get Viagra/Cialis on the NHS, one bad thing about MS, you need it!”
For me Cialis is way better than Viagra. With Viagra it gives me a facial flush and odd sinus feeling, although does it’s job.
Cialis is my preferred option it’s great. My GP prescribed it for me and you are rationed to 4 pills a month. The highest dose is 20mg and you can use them as you like.
MS is bad enough and as any man knows any impotence feels pretty emasculating. Would I choose to need it - no does it help me feel good about myself and able confidently make love- absolutely. I’m also very lucky to have a very supportive and loving wife.
So my opinion, give it a go Ben but obviously choose your own path
How do you take your CBD oil Adam. l have just ordered some from CBD Brothers. l do have Sativex - but wondered if this would help more. l need something to help me sleep - have dreadful insomnia. All the prescription drugs make me so weak and feeble so l keep off them.
Hi Spacejacket, when I have insomnia I drink chamomile tea before bed as it is a slight sedative, it seems to work for me. The downside is I need the toilet in the night most nights.
Thanks Adam, l have ordered the White Edition - could not see where to put the discount code - so lost out on that. When l use the Sativex - you spray it under your tongue and hold it there. Tastes pretty foul. You never forget you have taken it! l was hoping for information on their site as to which would be best for MS - and psoriasis.
I have been on Tecfidera now since June last year. Still have some of the side effects but mostly the hot flushing/burning.
I am just wondering if anyone has experienced issues with their eyes?
About two weeks ago while I was at work my eyes started to go a bit “funny” and i originally thought it was the start of a migraine! but nothing came of it. It happened in both eyes and the best way i can describe it is to say it was like looking through a crystal. This lasted for about 20mins then went away just leaving my eyes very tired. Then it happended again about 30mins after and lasted about 10/15mins this time. It then happened again later that evening but lasted no longer than 5 mins.
The same thing happened about two months ago, but just the once for about 20mins.
Could this be MS related? I have not spoken with the MS nurse about it, but I was at physio today and I mentioned it to them who suggested I make an appointment with my GP. It has not happened again since so I don’t want to bother anyone. Just curious if anyone else has experienced eye problems? My eyes were tested earlier in the year and they were fine.
I have been using CBD for some months now. I take two drops three times a day for neuropathic pain in my legs. I find that it does help to reduce the pain, especially in conjunction with exercises set by my physiotherapist. The combination works well.
I believe it also helps with bladder control (I suffer from urge incontinence) and improves my general wellbeing. I am sleeping well and I do not have to get up for a pee quite so often now.
Before using CBD I had been prescribed Gabapentin but I did not exceed 1800mgs daily. However, I did not like the side effects and I certainly did not wish to enter a spiral of increased dosages and dependency. I stopped taking it once I started using CBD.
Having found a natural product that improved my condition, the government moved in and insisted that suppliers apply for licences but only providing them with a very limited window in which to apply. This has been extended by a month. I am sure you are aware of all this but I include a link to an article on the volteface website.
I fully understand that the government would wish to protect its citizens by controlling the quality of any product making medicinal claims but suppliers may well circumvent the ruling by offering CBD as a food supplement. We shall see what happens when the extended deadline is reached.
Cannabis based products may offer solutions to symptom management in many conditions and I believe it is very short sighted of the government not to acknowledge this. Unfortunately, the recommendations of the All Party Parliamentary Group, based on the Barnes report, will hardly feature on a government ‘to do’ list whilst we are embroiled in the saga of leaving the EU.
If anyone has read this far on this thread- there is a FB group where you can get information on CBD it’s called CBD Users UK
They can provide all your answers.
Doeshetakesugar CBD is not banned from January it’s just becoming licensed. The company I use are CBD Bros as a result of the new regulations they cannot make medical claims but can sell CBD oil as a food supplement. However the other users will give advice.
As for Vaporisers CBD oil should not be used in a Vaporiser as it can be dangerous. It needs to be specifically made for them I’d like any suggestions