My sister contacted me yesterday and said why dont you try CBD oil? She will suddenly pop up and mention all kinds of things i should try even if i have never said i need anything. I know she means well, but then when I say i have discussed this at length with my neurolgoist who doesnt advise it, she gets all shirty and takes umbrage and leaves me feeling awful and ungrateful because she had at least thought of me.
I cant help it, I did talk to the neurologist at length about it and sativex, and he said he didnt advise it as there was simply not enough evidence it did much, either for the good or bad.
so asked about CBD oil, he again said its up to you, but its expensive and I cant say it will help if you have nerve pain, if you suffer with really bad muscle spasms and stiffness i could give you a prescription for baclofen. At the time yes i do get spasms and stiffness but i manage the pain for me the worse is the nerve pain.
so we agreed if i got worse or needed him i could see him through my MS nurse.
Now I am on the naughty step. when will i learn to just accept what she sends me and say thanks…and move on BUT i know her, she will then say COOL I will send you links on retailers, and when she comes to see me she will expect to see evidence. lol.
OK so question how many use CBD oil, how many find it works, and where is the best place to buy it?
see i have asked. My daughter then tells me she knows tons of people with MS who take it and it works and tons of people with parkinsons. Now she has fibromyalgia which would be the perfect person to use it, oh and guess what she doesnt lol.
I dont know tons of people with MS who use it. I would be interested to find out if it does work. I do know someone several years ago who was given sativex and it made her sick and did not change or help her MS. I have seen discussions about it and the overall thoughts were it was expensive when we could have stuff free on NHS to deal with same issues.
Morning CrazyChick. I haven’t tried it but a friend of mine suggested I try it. She hasn’t got ms but a few years ago she had a serious car accident and fortunatley she got out of the car alive but every since she has been in a lot of pain and uses cbd oil. She says it eases the pain! I am thinking about trying it. I think I would rather take something natural than be pumped full of pills. I suppose it is like everything a thing that works for one person might not work for another. Like you said it is expensive but the only way you will know it works for you is to try it.
I used the over the counter stuff, for me it did nothing, wasn’t strong enough, I wouldn’t dare just buy anything stronger off the net, so I’m waiting for it to be available on prescription for my neuro.
I used to use charlottes web the medium strength (all I could afford at the time). Is about £200 a bottle per month! Did stop my spasms but sadly as my ms has progressed and I’ve had breast cancer twice now it doesn’t do anything. It might help and would recommend trying charlottes web but pricey. Good luck and I hope you’re one of the lucky ones it helps xx
I’ve gone down the CBD oil route, tried the weaker & cheaper over the counter stuff which did nothing at all, so I then visited a very well known private herbalist who was selling a much stronger and more expensive oil, however after 3 or 4 months I saw no benefit at all, in fact it was the the herbalist who told me I was wasting my money buying CBD oil.
I then spoke to my MS clinic about Sativex, and after going through a trial period with a spasticity consultant I was prescribed it by my GP, again though after 12 months of experimenting with different doses of the Sativex I’ve come to the conclusion that it’s not all it’s cracked up to be.
It just made me feel woozy and nauseous, and dare I say my legs actually felt heavier when walking.
Even my consultant at the MS clinic isn’t overly excited about the success rate of Sativex.
I’m now back on the Baclofen, 2 x 10mg each morning, it don’t offer 100% relief but its far better than CBD oil & Sativex.
Hi JT now that is exactly what my neuro said the findings are not good it makes some people really woozy and nauseous. i know the girl i spoke to stopped because of it, and she was one of the first on a trail. My neuro has always been honest with me, and he wasnt excited either about sativex and thinks the money could be best spent on other drugs that are tried and tested.
he did mention baclofen. I am hoping to move soon just started bidding on new places, and once i have moved i am going to see my neuro again and talk to him about baclofen and also ocrevus, as he was happy for me to try that but at the time i wasn’t in the right frame of mind (when am I lol).
What I would say about Baclofen is that you might need to experiment slowly with the dose.
My consultant said the window to get from benefits from the dosage it is very small.
Basically you may find that 1 tablet does nothing so you increase up to 2 tablets which again does nothing so you consider going to 3, but in my case when I first tried it, I found that 1 did nothing, 2 did nothing but going back to 1.5 helped !!
It’s an odd drug that you need to find an exact dosage that triggers a response, it might not be a simple case of just increasing every time.
Theres a lady at my clinic who also takes 2 x 10mg but if she takes them together theres no response at all, nothing !
But if she takes 1 x 10mg first and then 0.5mg an hour later and the other 0.5mg an hour later she finds that this works for her.
Its like as if you need to introduce the drug in various stages and dosages to kick start a reaction.
I think this is what my consultant meant by saying the window to a reaction is very small.
But then again we are all very different, so what works for one may have no effect for someone else !
I really do hope that you get some sort of success.
A good friend of mine with MS used CBD. His walking took a drastic turn for the worst in July. In desperation he tried the CBD oil a friend suggested. His walking gradually improved. None of her doctors thought it was a good idea and the non regulation worried him so he stopped. His walking gradually got bad again. So in the end he returned to isum CBD
The CBD oil you can buy in this country do not contain any of the THC chemical which is the actual active chemical which has anti-spasmodic properties. You may as well chug some vegetable oil for all the measurable medical help it would be. The research on cannabis is limited as govts across the world haven’t issued many licences for research projects. Until there is more research, personally I’d be more confident with treatments which have been subject to rigorous testing.
Even the Herbalist who was selling it to me at £65 per bottle, said " You’re Wasting Your Money".
I had already purchased 3 bottles by that time, but I did appreciate his honesty.
Going one step further, I then tried Sativex, which again did absolutely nothing for me.
Even my MS consultant and specialist nurse both said that Sativex had mixed overall views, and that in their opinions it was not all it was cracked up to be by the media.