I’m new to this forum (and forums in general!)
Mum is early 60’s diagnosed for over 20 years now. She recently moved to an Extra Care home with carers who make 4-5 calls per day and a welfare supporter who does mums shopping sorts paperwork etc, she also has an appointee to manage her benefits and finances.
I don’t know much about the types of MS, but the symptoms she has now are the worst they have ever been, She struggles with he speech, finds it hard to control movement with her hands, is doubly incontinent and suffers greatly with her bowels (3 x ambulance visits in the last 6 weeks). She cannot walk (Uses a powered wheelchair). She is high risk for choking and has a mashable food diet. She has tremors and her vision is failing. She also has issues with her memory. She must be hoisted on and off her chair.
She also lives 200 miles away from her family.
My sister lived with her until she moved to the extra care home. This is the first time she has lived alone all her life - its been about 3 months now.
She has a landline phone, and she can call me as I am on speed dial. We call each other every day and chat for 20-30 minutes.
She is increasingly getting more and more distraught about being on her own. She sobs on the phone either because she is on her own, or because she has pain in her bowels. The vast majority of these chats are negative in some way.
Because her memory is so poor, she asks the same things all the time. I am always patient and gently steer the conversation to things she does remember and can usually end the conversation on a positive note. The last 2 days however have been awful, she is still sobbing when she puts the phone down. I feel so powerless to help, I’m distraught myself, and I’m starting to dread the phone ringing.
We are in the early stages of applying for mum to move closer to her children, which the social worker has encouraged as she feels mums social needs will be better met when she’s closer to all of us, although so far this task seems insurmountable and I am met with hurdles at every turn.
I’m not sure what I’m asking for really on this thread!?!..
Can anyone help with helping me to help mum with her low mood. Can it be addressed? Is it significant to MS?? It is terrible to her her crying all day everyday on the phone. Who do I go to to support mum with this?
There are tons more questions, Sorry!!
thanks in advance for reading, sorry it’s been a long post!