I am new to the Forum and infact the site. I am wanting some help/advice… and not really sure where to start.
My aunty who is 50 has MS, i’m not even sure what type, I am presuming from reading on here that her’s is pretty bad and progressed as she has had it for nearly 20 years. She has coped with the deterioration of her ability to walk for years and is only now that everything is really starting to show. Her walking is now VERY poor, she has had many falls, one that resulted in her visiting a&e for stitches in her head. Her eye sight has deteriorated, as has the use of her right arm/hand resulting in poor handwriting and difficulty cutting food.
My aunty is married and has two older daughters that have both now left the childhood home and either work or are at uni far away. My uncle has a busy job and is often out of the house from 7am-7pm. She also lives a good 2 hours away from me and the rest of her family plus she also has only a handful of friends where she currently lives. She has kept her MS under wraps for many years and it’s only recently that she has told her daughters and friends exactly the cause of her bad walking claiming before she had a bad back!
Over the last few months I have seen a noticable decline in her health both physically and mentally. She has little support from her nurse or is reluctant to access it!? Her home is difficult to get around and she now stuggles to get upstairs and to the toilet, she also finds driving difficult and has pretty much stopped, resulting in her being in her home 24, 7, she is very depressed but as I said, reluctant to access any help, she really needs a wheelchair, alterations to her house and a carer etc I also feel my Uncle isn’t coping and is opting to stay out of the home to not face up to it which I can understand, it is devastating on all the family!
I am very fond of my aunty and am finding it all very upsetting and would love some advice on what I can do to help her come to terms with the situation and live a better life. I feel she feels on her own and is giving up in a way.
Any advice would be greatly appreciated!
A VERY worried neice x