Can’t really offer much advise but i am another partner of someone with Ms( got verbal diagnosis in July but still not 100% formally diagnosed).
I love Carole’s answer about her hubby being a born fixer,i am more of a bodger but think what she says sums up quite well how i feel. Cable ties, bits of string and some fibreglass ain’t going to fix her so i am lost!
When she had a sudden episode of severe problems early this year and MS was mentioned she told me i should go, but i wasn’t having it and told her i took the old "in sickness and health " seriously,i know 100% if it was reversed she would be there for me!
I do my best to support her emotionally and try to go to every appt etc with her ,on the whole i try to be as positive as possible.But as we have delays, set backs etc it sometimes hits me hard. As i say she was pretty much diagnosed in july.We then went for 2nd appointment expecting to discuss DMD’s only to find neuro had left and a more junior colleague in his place and still no diagnosis and MRI still not viewed.Seemed like a total waste of 6 weeks and i felt really low(depressed?) for a good couple of weeks, When i am in that state i don’t really discuss my feelings too much as i think i would struggle to verbalise them without making her upset more.Once they have settled a bit i do think its important to discuss how it makes me feel rather than build it up too much.Haven’t really got anyone else to talk about it with!
Hate seeing her in pain and struggling so much but sometimes i can go to work and be really busy and put it out my mind for most of the day, other times i think continually about everything thats going on and let it affect me more than i would like.I think about things like should we spend everything and enjoy life as much as possible whilst we still can or do be sensible and save for the future just in case. Its hard to stop it(ms) being the only topic of thought and conversation!