A brief history: in April 2019 my hands started going ‘fizzy’. I waited a few weeks but t didn’t stop so I booked in with my GP. Of course I googled the symptoms thinking it may be connected with my diabetes and MS also cropped up. Out of curiosity, I looked at the symptoms and discovered that I had or have had most of them. Now my doc knows me well enough to know that I do not jump to worst case scenarios and that I was aware that probably had a collection of unrelated symptoms, and he suggested that lightning was unlikely to strike for a third time (I’ve survived breast cancer for 15 years rather than the 5 years expected, and had a heart attack, where my heart stopped while they were putting the stent in. I’ve also had cluster headaches for 30 years and type 2 diabetes). I simply raised an eyebrow and he referred to neuro. I had to chase this up after 6 months, only to find they had lost some referrals and thank you for ringing here’s an appointment for November! I went through a full examination and the consultant said she was positive I didn’t have MS, but referred me for head & spine scan anyway.
So I had the scan on December 29th 2019 - and got the results at the end of June 2020! They’d found multiple lesions and a cyst near my pituitary gland. She diagnosed Inflammatory Demyelination and said I should have a lumbar puncture. This was done on November 24th and I am still waiting for results.
It feels like I’ve had to chase at every stage and it’s really starting to get me worked up and worried. I know it has been a difficult year for everyone (I should do - I’ve lost both my parents, my mother-in-law and my brother-in-law in 5 months, none of them to covid) and NHS is stretched thin, but it’s been 21 months and all I want is Yes or No!
Sorry for the long post and I’m not even sure what I’m asking, but putting it all down has helped.
ADD - I’ve also now developed an internal tremor/shake and don’t know if it’s connected.