Hello, I am new to this and waiting for diagnosis. This situation started on December 10th when my right leg went numb, by the next morning I was unable to move my right leg and was admitted to hospital. Unfortunately, despite neurological symptoms I was placed on an orthopaedic ward and when I regained some control of ly leg 4 days later I was discharged.
It took me 6 weeks to get MRIs and an ENG test before I saw a consultant at end of January.
I was diagnosed with chronic inflammation of the spinal cord and lesions at T4 but was told I could not be treated until I have full diagnosis following a contrast MRI and a Lumbar Puncture.
CMRI had happened but today I have been told it will be at least a further 10 weeks wait for LP and results so I should see the consultant again I;August. 10 weeks of living with some really unpleasant symptoms with no diagnosis and no treatment is really having a heck of an effect o;me and my family.
Has anyone else had this kind of wait for diagnosis? Does anyone have experience of getting an LP done privately?
Any support or advice would be greatly appreciated. Thank you. Carey
Hi there Carey, so sorry to hear you’re going through this. Must be horrible to have to wait, especially when you have really nasty symptoms which are really affecting your life right now.
I’m also new to the diagnosis journey so imagine others will have more practical/much better words as well as advice for you.
In terms of timeline, I was given a lumbar puncture in the space of about a month via the NHS (which I think is quite speedy).
Again, cannot stress how much of a medical professional I am not, but have you been given a diagnosis of ‘clinically iscolated syndrome’ or anything like that? I was told I had CIS and was able to get steroids after going to A&E, which helped get rid of some numbness. Technically you should be able to get steroids via your GP too, but mine were reluctant. https://www.mssociety.org.uk/about-ms/types-of-ms/relapsing-remitting-ms/managing-relapses Apologies if this doesn’t apply to you at all, but thought I’d mention in case.
If you are in a lot of pain and things have developed, might be worth a trip into A&E if at all possible, if only to update that symptoms are worse?