I was just wondering if anyone shares this odd internal vibrating / buzzing feeling in the limbs? Ive been “vibrating” for about a week now - sometimes it almost feels as though Im shaking (though outwardly Im not). I feel like I have a mobile phone vibrating inside me. Has anyone else perhaps experienced this?
Hi Caro, I’m afraid so I call it Blackberry on vibrate.
I’ve been off work since March with an instance and diagnosis of Transverse Myelitis, followed by what I think was another event in July.
I have only had the vibrate mode since July…sometimes it’s in my core/trunk and sometimes its in my head.
Its usually more pronounced when I’m in bed I have no idea why, and my husband says that I don’t vibrate…you know it would be funny if I wasn’t so sick of all the weird sensations.
I am due to get the results of a recent MRI in October so I will keep you posted.
Gillian
I get this a lot as well. For me it’s worst when it’s in my face, but luckily that symptom is not one that’s stayed with me for a long period of time. I do find you get some weird looks if you try to explain it to someone who’s never experienced it though!
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I get it intermittently, it feels like a bumble bee, it scared me at first. F.
Well Im glad Im not the only one but sorry you have to share this experience. Gillian, how did they diagnose transverse myelitis if I may ask? Is the MRI in Oct for the TM or MS? I really hope you feel better soon.
In the last week I keep feeling like Im really buzzing, sometimes its very intense, sometimes it almost goes away, today its really strong and making me feel kind of dizzy because Im just on vibrate all the time. At times it also makes me feel shaky too (like when you havent eaten enough and the blood sugar levels go down - except I feel that way whether Ive just eaten or not). And yes Gillian I also feel it strongest in bed but also when Im sitting at my desk working or walking about…
Hi Caro, there seems to be a link between TM which is inflammation of the spinal cord and MS.
There have been some brilliant posts on the subject…if you put Transverse Myelitis in the search box they are well worth a read.
I have tried not to focus on the odds of a one off bout of TM becoming MS. Unfortunately the TM really knocked me about and I lost a lot of mobility and became housebound for a while. As I was recovering I felt I may have had relapse and went back to the neurologist who ordered fresh MRI’s as I had new symptoms. My concern is that the TM becomes MS.
hi caro1
i had 2 emg test first 1 showed nerve damage
im still waiting for second results and i have not been dignosed yet im just serching for clues on what i got
i had mri on my neck and back that came back normal
hope you feel ok hugs to you
Yep, I get it too, especially when tired or stressed. After my (not so) pleasant morning, I’m buzzing and shaking away nicely in just about every part of my body!
It never ceases to amaze me that other people can’t see it!
Karen x
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Hi caro Yep I get it although thankfully seems to have gone for now. I described it to neuro as having a mobile phone on vibrate implanted as well! Just another symptom he told me…maybe we could all set up a BT exchange! Lol Mish x
Thank you all for answering and for your sympathy. It is nice to know Im not completely crazy but Im sorry to hear so many of you are buzzing and vibrating too. Whilst it doesnt hurt (me) it is rather unnerving and uncomfortable. Sometimes a specific body part buzzes briefly but at the moment i just feel like my whole body is kind of vibrating quietly from within. No one can see or feel it, just me (can feel it).
Gillian, I will look up TM! Cant believe you have to wait till Oct for an MRI by a suspected TM relapse! I would have thought they would want to do that immediately.
Rizzo, Im sorry you are also buzzing and shaking today. When you say shaking do you mean like I described it above (as if you hadnt eaten and blood sugar was low) or do you mean visibly shaking?
Thanks for answering my questions 
Caro
I guess a bit of both Caro. I have visible-to-others tremor which is most noticeable in my hands but also affects other bits of me. It varies day to day though and is worse when I am tired or stressed. The internal, invisible shaking feels like I’m shaking - like my insides are moving in tiny jerks, back and forward, up and down, in and out, in random directions. When it’s mild/moderate, it does feel like low blood sugar - good comparison When it’s at its worse, it feels like there’s a volcano building up to erupt and I know that my head moves a bit when it’s like this although most people probably wouldn’t notice. Then we have the muscle twitches and jerks to add on top - they are very visible, although I can often disguise them by crossing/uncrossing/moving my legs/arms.
Tbh, I’m used to it all now so it sounds very much worse than it is!
Kx
Thanks Rizzo for such a detailed answer re shaking
So you also had twitches. I have had periods of intense twitching but i was never sure if it had anything to do with the other symptoms. I had an emg but whilst doing it the neuro kept asking if I had a twitch at that moment so he could stick needle in that part of me and of course for the 5 minutes the emg lasted I didnt have any twitches which made me feel that you need to be twitching in that moment for the emg to really evaluate you. He was unnerved by the twitches because I had such strong reflexes that there was a “self limiting clonus” but after the emg brought no results the twitching was more or less dismissed and I just got used to them when they came.
Re shaking. It does really feel the same as if Im late for lunch and am slightly hypoglycemic.
Have you had these vibrating / buzzing / twitching symptoms from the start of noticing something wasnt right?
Best wishes,
Caro
hi caro1
i new bloga on this site
i do get twiches in most of my body when i had emg i had couple twitchs but i dont think that matters because i told him who done the test just matter waiting to see nuro for my results
best wishes to you
Hi Caro1
well i get the vibrating feeling when doing anything my legs feel like there buzzing
The first time i ever experienced this it was in my lower body parts i made a joke about it to the Dr saying i dont need Ann Summers oooops … just every time i had been to the toilet and wiped myself it was buzzing now its just my legs when i am walking they buzz
Mandyx
Yep me too. Always to lesser or greater degree in legs, and often in rest of body… esp torso… when tired or stressed.
I was in a shop with wooden floorboards and a huge chest freezer. Standing next to it the floor was vibrating like mad… that’s the feeling I get. Hard to explain to other people but I suppose standing next to a washing machine when spinning is also like it.
Believe it or not you get used to it in time.
Pat x
Hi,
Yes, I get this all the time…very hard to explain to people. I feel like I’m constantly ‘moving’ inside. A bit like electricity going through my body…or something being sucked up a straw in my legs…(weird explanation I know). Sometimes buzzing too.
Very strange…sometimes I feel like I’m going a bit mad…
Wendyx
Hi Caro
I get this invisible shaking and it amazes me that people cannot see it… it’s horrible and makes me feel quite weak. I also get the twitches/jerks that people can see. I hate these as alway.s feel really embarrassed when Im out.
Paula xx
Well I am definitely not the only one who feels she is vibrating then Thanks to everyone for answering !
I get it as well. I sometimes find myself checking I don’t have my mobile in my pocket because that’s what it feels like. I also get it in my chest like something is in my heart. It’s a very odd feeling. X
yep i get buzzing in my feet mainly, but it can move around. its not the worst symptom in the world for me, but its a disturbing one for sure!
xx