Hi new to this forum, i am a 53 year old female, and have had mild symptoms of MS for 10-20 years, ignored the lot as i was in denial (as my younger sister had MS for the past 30 years) and it was not happening to me. Heres a laugh for you all i was an orthopaedic staff nurse and believed everything the Dr told me, Ha ,Ha big mistake. I started to deteriate in June 2011, had an MRI lumber scan and was told i had a root nerve entrapment L4-L5 lumber spine,it was not to bad and did:nt require surgery at present. Recieved some physio for the drop foot i had and the numbness in the left leg.
Went back to work full time 8 weeks later, some days i struggled, but being a big tough cookie i pushed myself to the limit. i worked extremely hard in a very heavy busy ward, did long shifts starting at 07.00am - 19.30pm, then night shifts alternative weeks were i started at 19.00pm and finished at 07.30am (looking and feeling like a burst couch,). We had my daughters wedding coming up and kept pushing myself to the limit.
Any way the wedding was a huge success and brilliant day in (Sept 2011). Now fast forward to Nov 2014 and my granddaughters 1st birthday, i was admitted to hospital. i became numb from the toes to my chest, balance was completely gone, eye site was blurred, arms, face, mouth, tongue, all had pins and needles coming and going, electric shocks travelling up and down my spin, which sent painful shocks to my whole body. bowel and bladder problems, fatigue with a capital F and a whole host of weird and wonderful things.
I received MRI scans and a lumber puncture (the NICE guidlines protocol) all sorts of weird and wonderful bloods taken, then after 2 weeks was diagnosed with RRMS, given 3 doses of Steroids, were upon my eye site improved and i was discharge home.
After 6 months of my GP chasing up referrals that should have been done and were’nt, i eventually got to see the MS neurologist and the MS nurse in the same week. they told me, all your symptoms will subside in a matter of weeks or months, and not to worry i would be back to work in no time.
Well its now one full year, all the symptoms are all still there, am practically house bound, i only go out for Drs appointments, and work assessments. My work the NHS is now in the process of terminating my employment due to ill health. i cant blame then as i know i will never work again due to this horrendous MS and it symptoms.
i currently hobble about the house, use 2 crutches short distances and a wheelchair if some poor soul wants to take me out for the day. Now thats a laugh, the longest ive lasted it 3 hours outside my house in the last year.
NOW HERES the punch line, i never let it get me down, i dont get depressed, i think to myself it could be worse, it could be something deadly. someone said to me “its terrible, your such a wonderful person, why you” that one i laughed at hysterically about, and said well why not me. Thats what i call a good Scottish sense of humour.
IT IS A TERRIBLE DISEASE I DONT DOUBT IT FOR A MINUTE, PLEASE DONT TAKE OFFENCE AT ANY OF MY RANTINGS, but i will live to tell the tail, play with my grand daughters, now three of them. My husband , son, daughter and good friends all keep me going, and keep my spirits up.
PS excuse the writing and the spelling, what do you expect iv got double vision.