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Going on holiday

We are off on our holidays on Tuesday after Molly finishes school, Im really looking forward to it. We are having a few days in Centerparcs Longlete and also popping in to see my sister in Devon. I’m both nervous and excited, Holidays are great but can be so exhausting too. Thankfully this year we managed to get an adapted accommodation. Last year we tried to manage with a standard chalet, but it was a bit of a disaster and my chair got damaged trying to get in the narrow doorway to the chalet without a proper ramp. It will be Frazers first holiday as an assistance dog…I feel so privileged to be able to take him with me, I think he will love it, he’s so good when i take him out to shops and cafes in the restaurants he just lies under the table on his blanket.

I’ll probably not be on here for about a week or two.

Michelle & Frazer xx

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Have a lovely time Michelle, hope the weather holds for you.

Jan x

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Have a lovely holiday all of you.

Pam x

Hope you all have a wonderful time Michelle and that the weather is nice for you.

Have fun but take care,

Nina x

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have a great holiday Michelle,cant wait to hear all about it when you are back.

Take care

J x

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I hope the holiday is everything you could wish for. With Frazer by your side I am sure it will be completely different than last year. Looking forward to hearing all about it.

Anne

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Bon voyage Michelle. You’ve probably left by now… but hope you have a lovely time!!!

Pat xx

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Have a great time, try and relax and enjoy yourself.all the best Amazon lady

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Thanks for your lovely messages we got back last night, it was a lovely but exhausting time. Frazer enjoyed himself and received lots of fuss and attention.

I wasn’t well today and ended up ringing nhs 111, not sure what it as but had a very tight chest and struggling to breathe, thankfully wasn’t serious although it scared me, it has calmed down now. my heart rate and blood pressure were up but i think it was made worse because i was panicking does anyone else have this? the doctor seemed to think it was weakness in my chest muscles, I can cope with weak legs but not weakness that effects my breathing, it was a very scary feeling.

Michelle

Hi Michelle, glad you had a nice holiday but sorry to hear you weren’t well yesterday.

Sounds like MS Hug to me… and you have probably got it because you’ve overdone it on holiday. I don’t agree with the hospital doctor about weak chest muscles. Only MS specialists know about MS hug… and what you describe is Hug!

It’s a spasm of the muscles between the ribs and I get it when I’ve overdone it, too hot or stressed out (and let’s face it… holidays are actually very stressful).

Michelle… Dr. Pat says you have to spend today in bed. No excuses!!! You need to rest.

Now off you go back to bed!

Pat xx

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So pleased you had a good time Michelle but so sorry you weren’t well!

I agree with Pat…sounds like the hug to me.

A lot of us get it…unlike most people I only get it on one side or the other…I’ve never had it go all the way around which I suppose is something to be grateful for!!

Glad you are home safely and hope you feel much better today,

Take care,

Nina x

Take good care and rest.

Anne

x

I’m glad you had a nice holiday. I get a really tight chest when I’ve exerted myself and struggle to breathe. The only way I can describe it is as if I have a really wide belt pulled tight around my chest. I imagine it’s like wearing a tight corset, where the chest muscles are being squashed. It eases if I sit quietly in an upright position but I know some people prefer to lie down. I’m sure you’ll find a comfortable position, but try to rest.

Take care

Cath x

Thanks Pat, its hard to rest because of autistic daughter, shes been full on all holiday and is still full on now we are home,I’ll be okay, i’ve got my Carers next week and i’ve arranged support from a special needs group for Molly.

It makes me sad, because of still not having diagnosis, theres no support from an ms nurse. It was so scary yesterday, id had breathing problems on and off for a few days but yesterday it sent me into a panic and Lee was out so i rang nhs, only for advice and they wanted to send an ambulance as i could hardly speak,… all i wanted was advice… i was actually thinking it maybe adult onset asthma… iv’e never had it before, and it wasn’t that. They said they would just send a non emergency car but half an hour later there was an ambulance with flashing lights outside! The paramedic was lovely, but i hate wasting anyones time and i hate hospitals so i refused to go in for monitoring as my oxigen was normal just high pulse, blood pressure and heart rate. They felt it was caused by my exisiting disability. I stayed at home and saw the out of hours doctor and he said he would write to my GP as he felt the same…caused by the condition i already have. The problem is… my doctor has already agreed and sent of for a second opinion out of area, but the Cumbrian health authority for that hospital have a policy not to see patients out of area…so i’m back to the drawing board. Even the lovely paramedic said it was so unfair. Anyway tomorrow i have he OT and the builder from disabled grants coming, so at least things are moving forward in that department.

Michelle x

Hi Michelle,

pleased you had a good holiday,but awful you are suffering because you have dared to enjoy yourself,

b****y ms,we try and enjoy ourselves and then have to pay the price,i agree with others sounds very much like the dreaded 'ms hug ’ why its called a hug i dont know its more like a death sqeeeeeeeeeeeeezzzzeeeeeee,cos it feels like that to me,pleased i dont get it that often.hope you feel better soon, trouble is we need a holiday to get over a holiday dont we lol.

J x

Thanks Nina…Well it wasn’t a nice feeling…not a soft cuddly loving hug!!

I heard people talk about it before…it felt like someone heavy was sat on my chest! and then i started to panic like a poor goldfish gasping for air. The panic has gone but i have a pain around my upper back.

Michelle x

Thanks Anne, I’ll try to.

Michelle x

Hello Cath, you’ve described it well that is how it felt…and then i panicked which made it worst.

I’ll try to rest …it was the worst iv’e felt yet.

Michelle x

Ah thanks Mrs J…Death squeeze…I felt like i was taking my last breath!.. Im much better today.

Michelle x

Hi Michelle

Glad your holiday went well, sorry to hear about the hug, don’t know why it is called that, as a big sounds nice, whereas this is like being squeezed in a vice.

It does make you panic, which makes it worse, but then its like a vicious circle, I find sitting up and slightly forward helps me, maybe worth a try.

I do agree with the others, rest now as much as you can, its a bit like needing a holiday to recover!

Pam x