Good morning all,
I hope this is the right place to post this.
I recently went for an MRI of my head due to headaches (mainly), nothing sinister in terms of tumours etc was found but an incidental finding of some white matter was discovered, 2 lesions I believe.
I then attended the hospital for thorough bloods, which have now been sent off, and a physical assessment. The physical assessment found some subtle weakness on my left side, but this could be down to my right side dominance, along with some sensory differences.
As a result, I have now been booked in for a LP on Wednesday and then urgent referrals have been made for a MRI of the Spine, an appointment with Ophthalmology and a nerve test.
My consultant said they didn’t think I have MS but need to rule it out. The sheer number of referrals and further tests needed, makes me think perhaps they are more worried than they are letting on but do not want to alarm me too much at this stage.
I was wondering if these lesions can just be something of nothing as I did have an MRI 4 years ago for another reason and they were noted as an incidental finding then, or could this have been the first sign of MS then but it’s laid dormant etc.
In terms of symptoms, these have been quite subtle, I have had what feels like ‘spasms’ in my left arm (probably 4 or 5 times over the last 12 months), along with sudden weakness in my left arm (probably 3 or 4 times in the last 12 months) and lastly a feeling that warm water is running down my leg (again, 4 or 5 times in the last 12 months), the first time this happened I had to check I had not urinated.
I was wondering firstly, if anyone is aware of the lesions can just be something I was born with and no cause for concern? And if the symptoms I’ve noted resonate with anyone else as they have been really subtle in comparison to some of the other stuff I’ve read? As described the weakness identified is also very subtle, and could be down to my right side dominance.
Thank you,
Andrew
Hi Andrew, yeh these whit matter lesions can be caused by things other than MS. Many people have them and they dont mean anything specific.
Neurology is a minefield…even for the medics!
Your symptoms can be MS like…but also anything else!
Let the professionals do their job and see what they come up with.
Boudsx
PS I’ve had PPMS 25 years and it took 22 to diagnose!
It’s weary work, waiting for the investigations to play themselves out, but there are no short cuts, and trying to second-guess what’s going on is not always helpful. It sounds as though the doctors are on the case, and I hope that you soon learn more. In the meantime, I wish you well with the waiting and wondering - it’s no fun, as I well remember.
Sounds like you have a good team of doctors working on it. Good luck.