I have had multiple attacks of ON since 2010 I have documented evidence of these from the ophthalmologists. The letters from my visits to the eye clinic confirm that my optic disc was swollen and rapd was present in affected eye, I also have internuclear ophthalmoplegia which causes my left eye to drift sometimes with nystagmus. I also have double vision sometimes with ghosting.
What I’m so frustrated about is that the neurologists I have been under the care of three in total were never notified of these findings by my GP.
Yesterday I suffered from a very scary episode I tasted nearly 100% complete blindness I could not see any colours at all from my right eye I could only see darkness with diminished light. I was in tears yesterday. For the first time as an adult I’m scared of what could happen next.
Why do these people not care and leave things to the last minute. I was under the false impression my GP was a good one. I have since changed Dr’s twice and hopefully the new ones when they get my medical records will refer me to a neurologist with all the relevant information.
I lost hope yesterday was very down and considered giving up chasing answers. My mood is now better and I will work with my new GP to try and help me get some answers.
I wish and hope nobody has to go through what I have experienced.