Hi all. I am 48 years old and waiting to see a neurologist. Let me tell you a little about whats been happening to me. Sorry in advance for this being a long first post
8 weeks ago I had pain in my right eye, then five days later, my sight was blurry in about a third of my right eye. Went to A and E and got seen by an opthamologist. Was not given anything not even pain killers. Saw my GP and took a list of my symptoms (that I have had for the past couple of years) - balance problems (sideways steps), feeling so tired I want to cry, horrible back spasms that really do stop me in my tracks, I have the most horrendous feeling of being boiled alive when my internal temp seems to shoot up suddenly… about 40 times a day, forgetfulness to the point that I live by lists, and other stuff that I cant remember now :(. I handed my GP the list, she didnt even really look at it, just handed it back and told me it was a motley crue of symtoms and she thought I was had Fibromyalgia (dx with that a year ago). This is different, I just feel unwell all of the time. There is something wrong with me and I want to know what it is now. I was sent away with a flea in my ear and told to take antidepressants. I AM NOT DEPRESSED, I JUST DONT FEEL WELL!
Anyway, got app through for Opthamologist, who did lots of tests on my eyes, but didnt really say alot to be honest. Oh, he did say Optic Neuritis. Anyway, he then ordered an MRI scan and told me to come see him again in 6 weeks time. Last Thursday during the course of the afternoon, I was working on my PC and my eyesight went blurry in my left eye! I phoned the hosp to report this new symptom, and was told to come back to hosp (there is an urgent eye clinic there) after the MRI that was scheduled for Friday morn.
Had the scan fri morn. Went back to Urgent Eye Clinic and saw a different opthamologist, who asked me many many questions about my general health. Then he said that I was dx with ON in both eyes, as a result of the first eye test I had (three weeks ago). I wasnt ever told that it was in both eyes. I was so worried as I thought I was going blind as in the past 8 weeks my eye has deteriorated massively!
Anyway, opthamologist sat and actually spoke to me about everything that has been happening with me for about an hour! He was brilliant. He also said if was able to do the diagnosis of MS, he would have done it straight away as I was a clear case of MS. But, obviously because of hospital politics, he cant refer me to a Neuro, so I have to go to my GP tomo (with a letter he has written saying about an urgent referral and probable dx of MS).
Wow, this is nearly a book… sorry. But, my question is, how long does a dx take. Im going to ask GP for a sick note as I cant drive with my eyes so blurry, and I cant do my job (admin/bookkeeper) when I feel so poorly! So will I be able to claim benefits before a dx? Its just me and my daughter aged 17. Im going to go to CAB tomo (if I can!) so it will be a busy day for me. Any advice I would be grateful for. Im hoping to see a different GP than the one who totally dismissed me!
Thank you all… Paula x