Was unsure weather to post in ‘before diagnosis’ forum or this one, but figure this is probably more of an ‘everyday living’ thing, so here goes!..
firstly, a wee bit of background: I’ve not been not diagnosed with MS but am being assessed… I know you guys can’t give me any answers about diagnosis, but I did want to know if anyone else experiences this?
I’ve been reading a lot of posts about how heat can makes symptoms worse for a lot of people. I did feel really grim in the very hot weather, and a few times I’ve had funny spells after a bath. BUT… and this is the bit I find odd - when the tingly pain hits my feet really badly, the only thing that really helps is sticking them in a bowl of hot water. I’m not sure if it actually eases the pain or just changes the sensation from pain to heat, but either way, it brings relief. My big soft fluffy boot-slippers are the only things that make walking round the house bareable when the pain is bad. I have also found that wrapping my wooly scarf quite securely around my kneck helps the pain there, and when I’m having a really bad time, a hot water bottle seems to dull/deminish the tingly sensations in my legs. I’ve been wondering a lot about this because (a) it’s summer!! and (b) I keep reading how heat can make symptoms temporarily worse… but for me (in controlled doses) it brings temporary relief / comfort.
Also, I think the times when I’ve struggled most with the pain have been when the weather is very cold (like last winter, waiting for buses :/).
Is this odd? Does anyone else have similar experiences? xx