Hi, I was wondering if anyone can relate to this or tell me how they cope with it. For a few weeks my right foot has been acting up in the sense that it feel like it’s kinda vibrating and has a bit of tightness. My MS effects my right foot. For a few months it’s been great as in not effecting me at all. But for the past few weeks it’s been troubling me. If I massage my foot it goes all tingly but that doesn’t last long.
I’ve searched and searched the Internet and forums to see if anyone can relate and unfortunately I couldn’t find anything.
Hi Not sure but could it be something to do with the heat . I have noticed my symptoms have been worse in the heat most noticably in my feet which I give a good cold soak to when I get in from work . My MS nurse said it was down to the he’s and hey she is the expert !! Ant
Hi Ant, I did think about that but I’m usually alright with the heat. I’ll give it a go tonight and soak my feet in cold water. I haven’t rang the MS nurses about it.
Hi . Yeah I was OK last year with the heat but its been a bit of a struggle this year . Which is a pain because I used to love the heat !! Gotta love MS haven’t you !!
A few years, before I got optic neuritis, I was standing in the street chatting to a friend and I asked him, “Is the ground vibrating?”. It felt like a silent pneumatic drill was nearby. He said no, so I thought no more about it. That is, until all the other symptoms started piling in on me.
As for the tightness, I think that is what doctors call “increased tone”; I call it stiffness of the muscles. It’s all the same thing; as that great neurologist Eric Morcambe might have put it “all the right signals, but not necessarily in the right order”.
And there’s only one cure, malt whisky. And keep it up until your wife tells you to knock it off.
Anthony
p.s. I suppose that the problem could have been the whisky in the first place. Hmm. More research needed I think.
Ant, I know right. When I’m on holiday where the heat is much more intense and better my symptoms don’t bother me but the first bit of heat over here and they decide to show up haha.
Tell me about it !! I was in Florida in March . It was 90 degrees plus most days and I felt great !! So the cure seems to be drink whisky and move to Florida !!
As I understand it, the heat in the UK tends to be a lot more humid than you’d typically experience abroad.
It’s the humidity that MS sufferers struggle with, not simply just the heat.
My elderly mother struggles with the heat/humidity during the British summer, but when she went to Spain last year, she was able to tolerate the drier heat right up to mid-thirties degrees centigrade.
Now, once they invent a teleportation pod that I could install in my front-room…
As with many observations when comparing / discussing symptoms, the topic of this thread has me thinking, ‘similar but different’.
My longest running, most familiar MS challenge is a ‘hot sock’. Only ever my right foot, up to about mid calf, front, back and / or sides. It comes and goes, ebbs and flows. Sometimes more like a buzz, sometimes so hot it feels cold (if you know what i mean?) Never any discolouration of the skin nor actual temperature difference to my unaffected left leg / foot.
It seems to get antagonised by exertion; ie. a really good work out or a skate. usually if i have just been busy, or not getting quite enough hours sleep, it seems to linger about to a lesser intensity. But for at least 90% of the time, it is there in some degree.
At the end of the day, i do my best to ignore it. It doesn’t affect my daily life unless i dwell upon it. After so many years, it seems unlikely to progress. I simply appreciate those moments when i actually leaves me alone (which if i am doing a good job of ignoring it, i seldom notice anyway.)
Good luck but for me, it doesn’t bother me if I do not let it bother me.
My foot has been a lot worse. Before I was diagnosed I use to drag my right foot and I couldn’t stand for long and it use to flop/droop. That continued for 10+ months. I have been thinking that it could be sleep related but I get more sleep than less sleep if that makes sense. Hopefully it’ll fix itself…
I rang the MS nurse up today and I’ve got a phone consultation with them tomorrow.
@ANT2615 I put my foot in cold water last night. Once I finally got my foot in the bowl, cos it kept Jumping out, I found that it kinda eased it.
