Diagnosis just a fortnight ago and you are thinking you should apologise for being pissed off? Oh please!
As if bomb shells of such magnitude were not already a challenge in themselves, you are also contending with the physical limitations of symptoms you would much rather not have.
If anyone has an actual entitlement to feel mardy, it is you. And if you feel that spouting such things allows you to unburden yourself even slightly, then in here, you can have at it!
With regard to getting on with it / being left to your own devices… i personally feel there is merit to this. in some ways i guess it might be a bit harsh, but with the variety of symptoms and severities, and the diversity of personalities of those needing to suffer the MS curse, i would prefer a health authority to NOT apply a cookie cutter guide of support / advice.
For sure there is tremendous value in a counselling service, especially as family and friends may also be left reeling by the diagnosis and are less than supportive.
As far as rest / ploughing on… well i try to persist with the notion that the sense of fatigue, weakness, numbness, pins and needles etc are all just figments of my imagination!
My arm isn’t really feeble, its just that my brain is left to think it is because the neurons are flaking out when delivering accurate feedback. And so i plough on and hey presto, i achieve whatever i had initially thought was too trying to manage.
But of course even fully healthy people get knackered too and so when done, you are done.
For now and forever, i think the best thing you can do when measuring your rest / activity balance, is to learn to listen to yourself and how you are feeling. Test your limits and have courage to stretch them. If as a consequence you feel buggered the next day, try to accept it instead of being made anxious by it.
for example, don’t run a marathon on monday and end up concluding you are having a relapse when you cannae get out of bed on tuesday
You have a period of significant adjustment to make, but the rules of this life have not changed: everything in moderation; make the most of every opportunity; try to appreciate what you have, instead of lamenting what you have not.
Good luck and keep on trucking!