Fingolimod and new Coronavirus treatment if positive

Hi Not been on here for a long time and hope you’re all as well as can be.
I’ve just received the NHS email saying I would be eligible for the new Coronavirus treatment if my PCR test was positive. I’m wondering if I should confirm with MS nurse that I would be able to have it with being on Fingolimod? When 1st vaccine was announced she told me to confirm which ones I could have ?
May I please ask for any opinions you may have?
Many thanks Equus

Sorry, I can’t answer your question but I’ve just had the same letter and am most surprised as I’m PPMS and not on any medication. I’ve also never had a shielding letter.

Hi I’m RRMS, but classed as High Risk due to being on the Fingolimod not the MS. :snowman_with_snow:

If you haven’t already read this from Prof Giovannoni then it may answer your questions:

This is the NHS letter, in case anyone is interested. Not that I received one being a PPMSer.

C1478-letter-deployment-of-covid-19-treatments-for-highest-risk-non-hospitalised-patients…pdf (england.nhs.uk)

Thanks everyone for your replies. Happy Christmas :snowman_with_snow:

I got the email yesterday and I’m PPMS. I think it’s for anyone with MS.

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As far as I can make out, this is for everyone on the NHS system diagnosed with MS.
I had an email yesterday from NHS head office (so to speak) that my email system decided was junk.
It may take a few days for everyone to get theirs.
For once in this crisis they appear to be keeping it simple and sending it to everyone with a confirmed diagnosis. In a letter to GPs explaining the system (it is much wider than MS) newly diagnosed MS is used as an example.

Hi, I have also received this email… not received the pcr text kit yet though… soo confused with everything thats going on with the omicron variant. I was all settled and knew what I was doing for Xmas, ( going to my sons and his gf ) I had decided that if we all do lateral tests beforehand I would be fine but now receiving this email has made me think should I just stay at home to be safe… im scared but don’t want tobe alone again this Xmas… any advice would be good.
Ps on fingolomod but no other health Conditions ( that I know of)
Stay safe everyone

Hi me again. Sorry if confused some folk. Yes think anyone with MS this time is being contacted about treatment, but when said earlier contact was due to me being on Fingolimod I was replying to the lady who said she was surprised as she had PPMS and never received a shielding letter. Believe ‘only’ having MS didn’t make you ECV, only if on DMTs.
Probably confused you even more now, but hope that clears it up.:rofl:

Hi sorry you’re feeling scared - it certainly isn’t easy. I’m in a similar situation, all exited about finally sharing Christmas Day with one of our sons, daughter in law and 4 grandchildren (one who was a May Lockdown Baby so already missed her early year) but the two grandsons have now shown PCR Positive (thankfully feeling ok) so no mixing with any of them. Our other son and partner who live 300 miles away were also going to visit, but he too is also PCR Positive (feeling fairly ruff) so again no visit. It’s terribly sad, but must admit, like you, because of the current situation and being high risk, I’m actually relieved in lots of ways that we won’t be in contact with anyone. I had already started to wonder if it was the right think to do with the way things are after shielding completely for the first year? So, decision taken out of my hands and this year Just my husband and me again. Maybe the father in law from a distance.? Rubbish start to the festive season, but the main thing is we all stay safe, none of the family don’t get any worse and we feel happy in the confidence whatever our decisions. Hope you don’t worry to much and enjoy Christmas whatever you do🌲

I’ve just put the same question in to the MS nurses re Tysabri. If I get an answer, I’ll post it on here.

Hi Thank you that would be much appreciated.
Trying not to trouble them by phone as know it’s a very busy time. But if need to I will.
Regards Equus

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I think that shows just how easily this variant is spreading! You were fortunate that they became positive a few days before they were due to visit. Hope they just get a very mild dose and recover quickly.

Hi, sorry for late reply and sorry to hear your family are now having to isolate but at least the decision was made for you like you say. It will be tough though for you all and not how it was planned.
I had a complete meltdown yesterday about it all after my daughter in law said she had lost her voice ( no pain and no other symptoms except a sore throat last week , which she has had before so I/ we think its non covid related) she has been doing lat flow tests every day for around 10 days sometimes twice a day and all negative so I’ve made the decision to go to theirs tomorrow provided everyone is negative in the morning. Its all so very difficult and not an easy decision to make but I really don’t think I can spend Xmas on my own again ( no partner) it’s weighing up everything including mental health… my son is collecting me so I don’t need to use public transport either which is also a relief .anyway I’ve waffled on but I do appreciate you replying to me and I really hope you and your family stay safe/ get better very soon and have a delayed celebration together ?
Merry Christmas

Have a good day! :christmas_tree::mrs_claus:t2:X