Fertility problems and MS

Everyday living
1

Hi,

I am hoping to find other people in a similar situation. I came off my MS medication months ago to try to conceive as the neurologist said I couldn’t try whilst on Tecfidera.
however, it seems that I’m not ovulating and therefore undergoing tests and scans to try to get to the bottom of this.

I was really hoping not to go back on medication because this would mean we’d have to stop trying for a while. I’m feeling the pressure of time not on meds. However, I feel healthier than I have done since before my relapse over 3 years ago and I think part of that is not being on meds. They definitely made me more fatigued and perhaps achy. I don’t have bad symptoms at all and so feel this is worth being off the meds to try. But worth it may take longer to conceive than my neurologist will advise. He is extremely cautious, I respect this but don’t know if he’s being overly cautious.

I would love to chat to anyone who has been in a similar situation, or had trouble conceiving and deciding what to do with medication.

Thanks!

2

It seems Copaxone is considered safe in pregnancy.

3

as you’re doing o.k. without any drugs I would stay off them and push to get the ovulating problem resolved as soon as possible.

4

Yes, this seems to be the only one that is safe. I will have to consider it in the near future if I’m nonearer to getting an answer. As it’s the least effective (30%) I’d never thought about it but it may be the only option.

5

You could opt for an infusion like Lemtrada, although that would mean delaying your plans for 18 months, or so. I recall the subject was covered on the Barts Blog a while back, but haven’t been able to find it.

I hope you find a workable solution with your Neuro.

"Pregnancy is not recommended during treatment with Lemtrada. If you plan to start a family discuss your specific circumstances with your MS team.