Hi there,
I realise the topic is dark but I have lately had these intense feelings of loneliness and it has hit me quite badly. Some days the only people I see are my carers and that is another thread topic that I will get onto sometime.
I have had MS since 1987 and managed to have a good career as a nurse, married, 2 children then I became seriously ill which led to my being in hospital for two and a half years and then straight to Leonard Cheshire home for two half years. Consequently my marriage fell apart- āin sickness and in healthā - did not apply and subsequently I ended up in my lovely one bedroom flat with hoist etc.
Anyway to cut a long story short I am quite an out going person and I love going to concerts, my problem is that I always seem to be on my own. I love going to London and I would live there if I had the chance (I live in S Wales). Are there any likeminded people out there who love to meet up so I can go to the theatre, concerts etc. Or can you point me in any direction in how I can meet new people.
I do not like my like my local MS group - no offence to the people who run it, it just wasnāt for me. I would just like some help and guidance to get me out of this rut that I find myself in.
I hope someone can help.
Thanks
Liz
Hi Liz,
I am afraid I canāt offer suggestions for meeting up/ getting out to concerts etc but just wanted to say I feel for you.
I know online isnt getting out and about but there are lovely people on this forum who will always lend and ear and care about you.
We canāt change your life but we can care and I find sharing my thoughts/problems on here gives me a lift.
Maybe someone from your area will have some ideas for youā¦hope so
Best wishes
Ell
1 Like
my first thought was you have done well to get as far as you have - being in hospital for two and a half years couldnāt have been much fun!
I hope you do find someone, be it a carer or friend who will accompany you to somewhere of your choice - you may have to ask them directly to do that
1 Like
hi liz
donāt forget that you can ask for a free carerās ticket to any gigs, theatre etc.
so ask them!
carole x
2 Likes
Darkness is welcome 
Acknowledging darkness gives me contrast - if thereās a low point, thereās a high to be had. Iāve just joined on here to look for practical advice and offer itā¦ when I canā¦ So I would say, practically, perhaps you can find something else sympathetic other than the local MS group by looking online to see whatās around your area. Iād look for a disabled/wheelchair (if you use one) yoga group or walking group. Both commonly exist. Or a local theatre group. Google is our friend! Suck it and see
1 Like
Hi Liz
Does your hospital hold service user group meetings? I was thinking these can be good to get to know other patients of all ages and of different health conditions. I know some hospital service user groups have social events.
1 Like
Take a look at the ānear meā facility at the top of the page and see if it comes up with any support groups.
1 Like
Something you will always find near you are churches and they should have clubs and activities as well as thevSunday services and Bible studies etc. donāt worry if you are not religious, churches are for everybody not just Christians.
I go on my villages Facebook page and have joined their group. I have got to know a few neighbours through that page.
Flo
2 Likes
If you are near a cinema (Vue), they have āliveā nights such as opera, classical, Shakespeare. If you canāt get someone to go with you, phone ahead and ask if you need help with the loo doors which tend to be really hard to open, ask for assistance into the screen and at the end ask someone to help you out. Taxi there and back will add to the cost but you can request taxis with lifting, wheelchair friendly facilities.
I go if I fancy a few hours out, donāt really want any company and enjoy something away from everyday life.
Could a carer come with you. Have you looked into volunteers locally?
Churches at Christmas time may have a community programme of picking people up for services especially Christingle or Sunday Service.
1 Like
Hi there Lizzie and all you guys,
I am new here and just want to say hi. Also feel I want to take this opportunity and say I think itās very important to take your message out to the world and share our feelings on living with MS with others like us. I glanced through the posts here and I saw this one and I felt like you are someone who should find my message cheerful Lizzie. Please Lizzie take a while and see my face, listen to what I have to say and letās get to know each other. I will be so happy. Please do the same guys. This is my message. This is my part in the society of MS. Take care guys!
Tomasz, 36, diagnosed in 2008, Gdansk, Poland
1 Like
Have you been to classes before like craft or a singing group? I joined a singing group a few years ago and we did perform as a group at a cafe. I found the singing therapeutic and helped my confidence.
1 Like