Feeling a bit stressed. Help!

New diagnosis and before diagnosis
1

Hey all

I’m not really sure how you can all help. But, I’m feeling a bit stressed and maybe it is helpful to write it all down, even if no one can actually help or reassure?!

I suddenly got really bad double vision last July - had an initial CT (clear) and an MRI scan which had a couple of white spots on. I was diagnosed with 6th Nerve Palsy - but the root cause still remains unclear. I have had a myriad of tests but everything else has come back clear. The double vision has gradually got better but comes back as soon as I start exercising, which is odd? (it also is not completely ideal as I am an aerobics instructor!).

Obviously, the Neurologist has mentioned MS, initially, I think more as a process of elimination from a lot of other things I I had tests for. But, I had another MRI scan at the start of February and have just been copied into a letter from my Neurologist to my GP reporting some ‘non-specific changes’. So, obviously I am freaking out a bit. What does this mean? My GP hasn’t got the MRI or Radiographer’s report and my next Neurology appointment isn’t for weeks (I have tried to change it with no joy).

The only other symptoms the Neurologist was interested in during my first appointment was the fact that I go to the toilet. A LOT!!! Plus, I slipped a disc in my back a year ago and have suffered from pain pretty much ever since.

I guess I am really asking how worried I should be that I might have MS?

Any advice gratefully received!!!

Thanks

2

hi lizzie

how frustrating for you as an active person being stuck in limbo.

to be honest there isn’t much advice i can give you other than stay calm.

AVOID STRESS as it only makes everything worse.

you can refer yourself to the bowel and bladder clinic where you will have your bladder scanned (ultra sound like pregnancy scans) to see if you are retaining urine and will be given advice and support.

your appointment isn’t that far away.

carole x

3

Thanks Carole - you’re right, it is just so frustrating having to wait and being left in limbo :frowning: I’ll try and stay calm and well away from too much googling. It really doesn’t help!!!