Hi Sonia, your not alone there, its been the same for me this ladt nine months too,- things like waiting. and not knowing still no dx and thats not including feeling ill 24/7, pain, worry about the future the list goes on. What to do? I think we just have to live with it. Relaxation technique’s may help or maybe a nice cup ot tea, or just putting your worries and things ‘on paper’ helps rationise them and gets them into perspective. Theres no easy answer and no magic wand, we just have to make the best of things. Remember we do have friends here for help and support so dont feel that your moaning I think we all understand how your feeling. Look on the bright side - you actually helped me put things into focus, thanks Sonia. Good luck. Frank.
Sonia I agree with Frank, write your thoughts down and how you feel each day. I have been off work now 11mths no dx of what is happening with me. Try and relax and I it can be boring just sat around, and then you start to worry more.
I know exactly how you feel. I was signed off work for six months and went back at the end of January this year. I felt very isolated and was afraid of what i was going back to and how i would cope. Everyone was lovely to me when i returned and i had alot of support from my work colleagues. i would say to make sure you are as well as you can be before attempting to go back, as it can be hard when you have been back for a lttle while for people to remember you arent 100% yourself. Try not to beat yourself up, dont worry about worrying, its natural.
Thank you all, I will start writing down how I feel as of now. It is like you all have said the not knowing and the isolation! My work were ok up until my return didn’t happen in September. I now am being looked at to go on a formal plan but will contest This as my appt is so close I think they should give me a chance to get this sorted. Thanks again Sonia x
I’m in my 7th month off work and yet have only had “glimpses” of my previous health and then been hit by something else.
I have bad eyes today and missed my ms group physio (nero physio says thats where I fit) and I realised how much I missed the people/social aspect of work and I had been managing to get out a little bit and its horrible to feel yourself being housebound again.
All I can say is chin up and be grateful for everything we can be xxx
Hi I have been off work nearly 11mths and loads of tests done, Mri non specific. Today was a good day until I went upstairs slow not fast or quick, the bedroom was spinning so fast I felt very sick and my eyes were moving quickly too.