Hi all, I am feeling totally fed up currently, trying to put the brave face on to the outside world. The constipation issue is still an issue, hoping dr will help tomorrow. I have managed to get my bowels moving, but it wipes me out for several hours. Spoke to nurse at drs surgery last week and got if the b&b clinic are treating you need to get an earlier appt with them. So I try and no appts available before mine on 18th March. Hoping dr will be more helpful. My trunk doesn’t feel as solid, but I constantly feel bloated, have really bad wind and burping. I hate being in public as it is really embrassing. I spent all of Friday chasing around between drs, nurses, ms nurses and b&b clinic. I was feeling like a nuisance and being fobbed off as was always for someone else problem assist. Or the standard keep monitoring it then come back to me. I know I could be in a worse situation. I am not coping at all currently. I am so frustrated that doing everyday simple stuff wipes me out. I have a tough week coming up at work, even though I work at home. I pushed myself really hard this weekend to get a document ready. Tonight I am feeling rough and now feeling scared about the week and managing to cope. Thanks for letting me ramble on. I couldn’t do without this forum and the support it provides from people understand this condition. Barney
Can’t comment on how to help, but I know how you feel being fobbed off between departments. This forum also kept me going when I was in a very bad way in September. So sorry I am of no help, but I am there for you in spirit 
hiya
havee no suggestionss-sorry but i have read urr post and mty thoughts r with u, ellie x
Thanks Actually had a really good appt with my regular dr. He discussed all the various options that were available so I could understand a decision. More tablets to try and solve the side effects of others. I actually feel like I am building a relationship with this GP. Just now have to wait to see if I start to get some relief. Barney
Sounds positive. I wish I had a relationship with anyone medical. Actually that’s not true, my MS nurse is nice, but otherwise I’m always seeing someone different. Hope the new medication works.
Oh barney-owl hate to see you so fed up!
Sending you big hugs
(((((((((())))))))))
Freckles xxx
Hope the new medication works for you X
Just had a thought, did you get something for your constipation I didn’t realise I was until I realised I’m not going regularly anyway the doctor at my last visit was prescribing some med and said just before I left oh I’ll give you a mess to take as your medication may make you constipated. So I now have this disgusting oily stuff to take twice a day. I’m a nightmare though unless it’s in my pill box I forget but when I have remembered it it actually works. It made me really gassy the first day sorry if it’s tmi so I think I was maybe more constipated than I thought. And on that note I better go and take it as I haven’t remembered since before the weekend oops. X
Lactulose is the name x
Hey Barney Ramble on all you like - I often do Bowels are just so crucial to,get right. If not they can make you miserable and control your life. They sometimes stop me going out if I haven’t been and feel I might if I go out at not a very convenient time or place. However there are just so many different medications which can help. It’s just the challenge of finding the right one. I was in the unfortunate position of having to use daily enemas or bottom bombs as I call them. It’s stick a thingy up your bottom and wait for results. Again different ones - some worked and some didn’t. The ones that worked were great as gave me the reassurance that I had been and hopefully wouldn’t run into problems later. Also occasional manual evacuation - wearing glove but still yeeeuuuch Now daily movicol does me Also tried persisteen I.e anal irrigation. Didn’t work for me. But many on this site report using it successfully. Em if your lactulose is disgusting ask for something more acceptable there are so many out there Ramble over!!! and feeling constipated Min xx
Hi min as you can see I used forum stalking tendencies here lol. It actually tastes ok well it’s more the texture cause it’s oily lol. I think I need a hot guy dishing out my meds. I might remember to take them then haha. I’m learning lots tonight on this forum. X
I have just hit an extreme low had to do the manual evacuation, not pleasant at all. I just didn’t know what to do I was screaming in agony. Hoping medication will help, have tablets now and suppositories so lets hope the combination of the two will help going forward. My lower body is numb, my middle is really painful and the rest of me feels completely wrong. The oily stuff doesn’t sound nice, dr didn’t want to give me liquid was very concerned it would cause me more nauseous. The thought of food at moment is too much to cope with. Can I have a nice hunky man to give me my medication too that sounds really nice. Hunky man wouldn’t want me in my current state! Let’s hope for better days ahead. Must take my meds now and try and get some rest. Barney
Thanks Jen. I think you can get movicol over counter but not 100% sure.