I am presently only formally diagnosed with progressive MS, probably because I didn’t take up the offer of an MRI and did not seek consultations in the first years. But I can’t see how it could be anything but primary progressive, as I never recognised any exacerbations or periods of remission and have just had a very slow deterioration in my walking ability. I’m in my late 30s. It seems that my symptoms are very one-sided. My left leg, arm and hand are much worse than my right. I have accepted the deterioration of my walking and loss of my cycling ability over the years, but what I fear so much is the loss of the use of my hands, as I love art, to draw, to paint, do crafts etc. These are things that are intrinsic to making me who I am, I feel. Thankfully I am right-handed, so I am managing so far. Does anyone else have these fears, and how do you cope?
With all good wishes.