Fatigue

It’s been 6 weeks since this episode started and about 3 weeks since I got blood work back saying I’ve got low b12. Go wanted to find out if it was low due to absorption issue like pernicious anaemia, so gave me oral b12 to take and repeat bloods to check levels again. I can feel a huge difference in my energy and I never realised just how utterly fatigued I was before. I had just gotten used to falling asleep in the afternoon and feeling so tired I thought I’d fall down. So, I obviously don’t have an issue with absorption. I eat meat, cheese and eggs, so I should be getting more than enough b12 through diet. Doctor at hospital said ms can cause low b12 due to huge numbers of it being used to try and repair the nerves. I haven’t had LP results back yet and going to call hospital tomorrow to see if they’re in (was done on the 20th April). MRI next week How long did everyone wait for their LP and MRI results?? Has anyone had oral b12 and felt a difference?? I’m still twitching and cramping in my leg and eye. Shocks have dulled. Suck if waiting :frowning:

I think it took about 3 weeks from having an MRI scan to getting a copy of the letter my neuro sent my GP, and I got the results of the LP at the follow-up appointment with my neuro about 8 weeks after the LP itself. It might have happened slightly sooner had Christmas not happened in the middle of that time!

That said, a lot depends on the neuro: my previous neuro took 6 months to see me to give me the results of the MRI scan he’d ordered. He isn’t my neuro any more.

I haven’t had my vitamin levels tested so I can’t comment on the effects of taking B12.

Thanks for your reply. Today has been a good day and my left leg isn’t giving way anymore!! Well, it is sometimes, but I’d say it’s working well 80% of the time. I’m so happy!! I tried lifting that leg up whilst lying down and it’s still not going up far, but I’m hoping that will come with time. Limping and not being able to leave the house with the kids alone was really getting me down, so now I’m feeling a lot more positive. Not much twitching left, only my eye. Fingers crossed it all continues to improves and just…buggers off forever!!

My knees threatening to give way was one of the reasons I got myself a walking stick. While I wasn’t thrilled to need one (my parents don’t yet use walking sticks and they’re in their 70s!), I decided that using a stick was preferable to falling flat on my face.

I got a collapsible stick so that when I don’t need it, I can fold it up and put it away.

I don’t have children but I run a girl guide unit and they have not said anything, they have just accepted it. The Brownies were more openly curious and asked if they could try it but accepted it without question when I explained that I need the stick to keep me upright so no they couldn’t try it. They ignore it now.