i had my blood results today which were all fine, apart from low b12 and slightly low iron levels (iron levels have always been borderline for me)
i’ll start from the beginning. I’m 30, female and have had neurological symptoms for the last 7-8 years. 7-8 years ago i had glandular fever and this is when i started to feel ‘electric shocks’. doctors couldn’t find anything wrong and said it was the virus working on me.
i’ve had these shocks every few months since then. no obvious trigger and would last a few days. i stopped telling the doctor because they always blamed it on my anxiety. even though i told them it was caused by movement.
i’d suffer from (what i thought were) aura migraines, where the centre of my vision would be blocked out, pain behind my eye which would last for 24 hour, but with no headache.
i’d get what was diagnosed as tendonitis in my arms, but there was never any obvious reason for it. i’m not an active person as i get very tired easily and my legs and arms get very weak and feellike i’m dragging lead.
3 and a half weeks ago i started to get the shocks again, which were knocking me off balance (nothing new), but this time, on the 4th day, if i was speaking an had a shock, i was slurring my speech. this hadn’t happened before so i went to the doctor, who sent me to a&e. They took bloods and put me on the list for a MRI, which i will probaby have to wait another 4 weeks for. since then, the shocks have lessened,but my left leg is very weak. when i’m walking it feels like someon has come up beind me and bumped into the back of my knee. i’ve got a visible limp and have fallen 6 times (3 with baby in my arms, and two at the top of the stairs!!). my left arm was really sore yesterday, like i had tendonitis in the forearm and upper arm. my ring finger, pinky and outer side of hand go numb and tingly sometimes and i always assumed it was (another) pinched nerve.my left hamstring keeps kinda cramping (weird sensation) and the same with my left calf. my foot went into a cramp today which was just agony!!
was told to get more bloods taken and went back today for results, which showed the b12 deficiency. been prescribed 300 mg a day and repeat bloods to see if it makes a difference to my levels. if it doesn’t, then means my body isn’t absorbing b12 properly.
My hands have been gradually losing dexterity for at least 18 months. i’ve noticed it more and more over the last 6 months. they just don’t work as well anymore and it’s een frustrating me so much. i have 3 girls and takes so long to plait their hair. i looked down a few months ago and thought (jeezo, when did i start holding things like THAT?!) seems i’ve been changing the way i use my hands to compensate without realising.
b12 deficiency would account for my neurological symptoms, but would i be having these off and on symptoms for the past 7 ish years (possible relapses) or would it be continual?? could low b12 be a symptom of ms??
sorry if this doesn’t really make much sense. i have serious problems wit my concentration, memory and recall (ridiculous over the last 3 weeks) and it has taken a while to write this. i know nobody will know until the MRI, but just worried about the future