Hi all, I know I’ve posted about this before but I swear this is getting worse, and I suppose I need a bit of reassurance that it’s ‘normal for MS’.
I’ve had 3 today. Feels like dying. Really awful. All energy drains out of me. I can’t talk. Can’t move. Feels like I might pass-out or have a seizure (but never do). Can barely keep my eyes open. All I can do is keep breathing and wait for it to pass. Lasts between 5 to 20 mins.
I went out to lunch with a couple of good friends to a pub (drank sparkling water!). Got taken by car. I think it was the excitement and talking that caused the meltdowns. 1 before I went and 2 in the pub. Really awful, frightening and upsetting.
I’m now in bed with general fatigue.
I know I’m not the only one that gets these. I’ve told GP, MS nurse and neuro and they all seem to think ‘normal for MS’ (or PPMS anyway)…
Don’t know why I’m posting really, just need to tell people who understand.