Hi Tess, of course you’re not being a baby!
Firstly, have you had physio? I was falling quite a bit and then was referred to physio (your GP can refer you). She came to where I live weekly for 6 weeks and taught me a lot about how to avoid falls. It was very useful.
My main problem was standing and then walking too quickly… so now I know to stand and then wait and get my balance first. She also taught me exercises to improve my balance. It’s very personalised so she will watch you sitting, standing, walking, and work out thing to help you.
Secondly, I would advise against giving up and staying in wheelchair. While you do have the ability to stand and walk… however limited that ability is… you should try to keep it going for as long as possible.
However I think as your mobility is so limited you should perhaps think about using the wheelchair sometimes. Nearly an hour to get up in the night is terrible. Was it nearly an hour to actually get out of bed or to get to bathroom? If that’s the case, I would leave wheelchair next to bed so you can use it during the night.
So it’s not ‘wheelchair or no wheelchair’ situation… but a combo of both.
Have you got ‘bed bars’ on bed? OT provided me with these… it is a bar that they fix to side of bed (held in place by a long piece that goes under the mattress) so you can pull yourself up and out of bed. Very handy!
I would say that you really need both OT and physio assessments to see how they could help make life easier. See your GP for a referral… or go onto your council website and look for their disabled services to see if you can self refer.
Don’t ever think you are being a baby hon. It takes huge heroic courage to live with this damned MS!