This year has been so tiring for me.
Got optic neuritis first in Jan, got it again in Feb so badly that I was admitted to hospital, had an MRI which showed brain inflammation and had a lumber puncture which showed abnormalities in the CSF (wasn’t told what was abnormal though)
Also had abnormal bloods with raised CRP. Wasn’t given any steroids, was told it would go away with plenty of rest, which it did.
Got optic neuritis again at the start of April, again so bad I was admitted to hospital due the dizziness from it making it so bad I couldn’t walk or even sit down without anti sickness tablets. Whole of my body feels worn out.
Finally got to see a neurologist for longer than a quick visit to my hospital bed, and he feels that I have relapsing MS but doesn’t want to say I do for sure without doing more tests to rule other things out (fair enough). Just had more blood tests to check my vitamin D levels and to check for other diseases such as lupus, limes, etc. Waiting for results.
Finally been prescibed steroids, Methylprednisolone (an IV powder I add to orange juice apparently :S), which i’m still waiting for from the pharmacy and been told to take vitamin D, as well as the stomach and bone protector. Trouble i’m having at the moment which is making me so stressed is doctors sick notes, i’m so dizzy/nauseus/wobbly I can barely walk anywhere without using my husbands arm for support let alone work. Neurologist told me to get the note from GP, GP says to get it from Neurologist. Fun little circle i’m stuck in. Not to mention the pain in my head which is stopping me walking, wearing my glasses and from sleeping
Just wanted to know does this essay sound similiar to any of you who are actually diagnosed with MS, I would rather know I have MS so I can then start dealing with it than being stuck in limbo.
I’m so exhausted from the pain, lack of sleep, backwards and forwards to doctors/hospitals. I’m literally in tears daily from the stress of it all, any reasuring words you can give me would really help. Thank you all in advance.
PS. Sorry about the length of this essay