I’ve just been diagnosed with Optic Neuritis for the second time but in the opposite eye. I first had it going back approximately 5-6 years ago but back then they didn’t know much about it or even have a name for it, just told me it was due to stress.
Everything we have read about it online leads back to MS and/or Neuromyelitis Optica. I have also been noticing that I struggle with my speech at times and get ‘shooting’ pains in my feet but I was putting that down to the possibility of wearing the wrong type of shoes.
I am currently waiting for an appointment with a neurologist. Has anyone else had any experience with ON and it leading on to being diagnosed with MS?
Any advice will be much appreciated and thank you in advance
I don’t think Optic Neuritis would definitely lead to a dx of MS, but you should mention the other symptoms you’ve been experiencing when you see the neuro. Many more tests would need to be done before he/she would reach that conclusion.
Hi there, I am a newbie and first time poster. I was diagnosed on Wednesday with retrobulbar optic neuritis. Consultant said if it’s caused by ms I could get steroids. It’s the first time ms ever mentioned to me.
i went to the GP who says I have hyper sensitive lower limb reflexes, I have had a weakness and funny sensation in my hands for a few months, a twitch in one muscle in my foot every night and a few months ago, I was dog tired with pain in every muscle and joint.
i am now over analysing everything and have got a referral for the neurologist but will have to go private as waiting list is so long.
not sure how to prepare mentally for the whole process.
I am a parent not a patient. My daughter had optic neuritis along with toe and finger numbness over a few months and gp laughed when I asked for steroids and nobody has mentioned ms. I am convinced this is what it is though.
It’s very inconsistent how clinicians approach theses symptoms. The neuro waiting list is possibly 6 months + so I will find the £200 to fund her appointment and hopefully MRI too.
Emotional side is sadly not discussed at appointments which is why people use this site, talking helps a lot.
Your gp sounds good and I wish you luck with diagnosis, May I ask what age you are?
My father in law is 84 and was diagnosed with Ms 50 years ago. My grandmother had ms too but I don’t remember her. I hope you have supportive family.
I am dreading the day my daughter is told her diagnosis and tryptophan prepare myself to be strong.
I just turned 38 a few weeks ago with 2 young kids. I have made a private appointment for 20 May with a neurologist which just seems so far away!
i don’t know what to be thinking, I have lay awake every night since Wednesday when the eye thing happened and I can see symptoms everywhere even though they may be completely unrelated.
its working out how to cope, I know a diagnosis isn’t the end of the world, it’s just something that has floored me as I wasn’t expecting him to say that, I thought I needed varivocals
I started with a bout of ON in my right eye. The optician couldn’t diagnose anything, I went to an ophthalmologist who diagnosed the ON and got me to have an MRI scan as it can be caused by anything stress, tumours or MS. When the results came back she explained that it wasn’t a tumour and that she ‘guessed’ it was MS but had to send me to the Neurologist for diagnosis. This was the first debilitating symptom I had experienced, however, when I talked to the neurologist it seems all the symptoms I have been experiencing and putting down to old age are the tell tale signs of MS. Aching legs, balance issues pins and needles and restless legs etc.