Read this… fascinating stuff. I jump at any sudden noise however small (hell when you live on a main road in London which I do) and also can’t stand loud noise:
http://multiplesclerosis.net/living-with-ms/myoclonus-startle-easily/
You might have to copy and paste link into browser.
Pat xx
Hi Pat
I tried but can’t seem to copy and paste!! Will get someone to show me later, but to answer your question, yes I am more jumpy than I used to be, and loud noises I can’t stand, especially in shops.
Hope all is good today for you.
Pam x (excited cos footy season starts tomorrow, how sad am I)
Pam it’s MS that causes it. Surprising but true!
Wish we could post links that would open (TECH TEAM if you’re reading this?).
It’s even got a name… a neuro type name for the condition but I’ve already forgotten it. Ah well Pam… at least you know that it’s caused by MS.
Enjoy the footy!!!
Pat xx
That’s really interesting. I’ve “jumped” easily for years since long before diagnosis. I’ve blamed it on my brisk reflexes in the past, but now I know!
Sarah x
Hi Pat,
There is something called Myoclonic Startle Syndrome, i don’t know if it’s linked to MS but I came across it looking for something my MS causes for me. Not sure if that is what you are referring to. I don’t startle easily though if anything I am the the other way and my reactions are slower.
Jan x
PS Just google Myoclonic startle syndrome.
Ah must be same thing as that link (if only it was a link!) opens an article on a condition Myoclonus which can happen with MS… leading to you being easily startled & have very bad reaction to noise in general.
I have a condition which I think is quite common and probably stress related. Often just as I’m falling asleep I very suddenly think I’m not breathing or my heart has stopped. It makes me jump with fear and gasp for air. Not really connected to MS as far as I know.
Another one which I have which I think might be connected to MS is actually called Exploding Head Syndrome (I know… you couldn’t make some of this stuff up). Again, just as I am falling asleep I hear a really loud bang inside my head… like someone’s just shot a gun next to me. Awful and scary but is actually a neurological condition.
The brain is a very strange thing.
Pat xx
The waking suddenly with a start is also a form of myoclonus spasm as are hiccups, both occur in people without Neuro conditions. In people with Neuro conditions these along with other forms of myoclonic spasm/jerk can occur. Or so Mr google tells me.
Pat I get what I can only describe as a sonic boom in my ear/head usually as I’m falling asleep but I have had it when awake, it makes me duck my head, it is very shocking when it happens. I never associated it with MS. We should write a book…A thousand and one things associated with MS …or should that be a million!
Jan x
Hi Pat, thanks for that…very interesting!
I have had a problem with noise for a long time now but it does seem to have got worse recently. The radio has always been a big part of my life but I have noticed that for two or three months I haven’t been switching it on in the mornings…it wasn’t a concious thing, just happened and I didnt even register. My MS nurse had told me that my noise problem was MS related. I hadn’t associated being easily startled with MS but I had realised that it was something that used to happen occaisioally and now happens several times a day. One of those weird things like seeing mice in our perpheral vision!
As you say Jan a millin and one things!
Nina x
[quote=“skippysprite”]
Hi Pat
I tried but can’t seem to copy and paste!! Will get someone to show me later, but to answer your question, yes I am more jumpy than I used to be, and loud noises I can’t stand, especially in shops.
Hope all is good today for you.
Pam x (excited cos footy season starts tomorrow, how sad am I)
[/quote] Yah footie way to go by sport etc etc
Boooo
Sorry could resist that one.
Me to, I bit my tongue drifting off to sleep last night and motorbikes woke me.
Don
Don, you have a wicked sense of humour…I love it x
Pam x
I have noticed myself being startled and physically upset by sudden loud sounds.
when we’re out in the car now I get nervous with apprehension waiting for the crash as Ruth shuts the tailgate. Me, who used to be able to sit through drum sound-checks without noticing!
I also experience the exploding head thing, and have done for years. Unpleasant.
Kev x
Made me larf Don!
A mirror does it for me for me
Hhahahahahaha… oh M you have a way of summing it up perfectly!
Hope you’re doing well hon?
I’m pottering around in dressing gown… just for a change lol…
Pat xx
Love it M, made me laugh out loud!
Hope your shingles is better now?
Nina x
Brilliant M, hope you are feeling better.
Pam x
Cheers guys, knackered before S more knackered? I don’t think this ‘cool’ Smiley is quite as nice,M
Pat you are amazing for finding these bits of information. I thought the startle thing was due to brisk reflexes too. And as for the hearing… if there are more than two voices or sounds going on my head starts echoing and banging. All sounds become amplified and it’s awful. I’ve invested in head phones and I listen to a talking book when I get wound up but if I’m out I use ear plugs.
Cath xx