Do I have MS or not?

New diagnosis and before diagnosis
1

Hello, i’m Sylvia. I’m new to this forum and i’m nt even sure i’m doing this post right or in the right place. If it’s not please forgive me.

I am sort of desperate at this point, so i am sorry for the lengthy post. So this is what happened:

In the summer of 2012 i started to feel a weird sensation on my skin, like it was numb, pins and needles, no pain in my right leg. I went to my GP and she said it was probably vitamin b12 deficiency. She gave me some vitamins, which i did not take, and about 2-3 weeks later the feeling was gone. A few months after that i was diagnosed with IBS.

For 4 years nothing happened, until last year. For the past 12 months I’ve had a tidal wave of weird symptoms. The pins and needles in my right leg returned, lasting about 2-3 weeks again. Last fall i started having really dry eys and then i started seeing double, my eyes couldn’t focus properly and as a result i would see everything double. I went to see an eye doctor who ask for thyroid exams, which came back clear. He said he suspected i could have either MS or Mystenia Gravis, so he ordered an head and eye MRI and sent me to see a neurologist. The neurologist, an intern, examined me (reflexes, walking and so on) and said he couldn’t find anything wrong (the double vision was gone at that time and hasn’t returned). I told him about the MS and Mystenia suspicions the eye doctor mentioned and he looked at me like i was crazy and just said “there’s no way”. I am 27 years old.

So i am waiting for my MRI, but i am wondering if the MRI the eye doctor asked for could show MS or not. If so i should ask for a new neurologist.

I was just wondering if you guys could help me make sense of my symptoms based on your experiences to set my mind at ease while i wait for the MRI.

Thanks in advance.

2

hi sylvia

you are entitled to have your concerns addressed so see your gp and tell him your concerns.

ask to be re-referred to neurology explaining that you are not happy with the outcome of the last one.

be aware that ms is notoriously difficult to diagnose but at least you need to be told that you don’t have the other possibilities.

all of us have had different experiences, mine was very straightforward due to a wonderful GP and a brilliant neuro.

at 27 you should not be feeling so worried.

at the end of the day you could always contact PALS (patient advisory liaison service)

carole x