haven’t a clue about the mri but got sent home with pills and apparently it’s all to do with migraine even though i ain’t had a headache lol. didn’t no they could paralyse you down one side and not even started on the pills as have to take one a day at bedtime.
Karen will be able to tell you more about this but I think migraine can cause all sorts of MS-like symptoms without any sign of a headache! Hope the tablets really help! Teresa xx
Hi Rachyf,
Sorry to hear about your experience. Being unexpectedly paralysed is really, really scary. I have MS but I also have another condition called hemiplegic migraine, which is a rare form of migraine, which causes paralysis and weakness on one side. Very scary and very confusing with having MS too as no one is ever sure which one is happening.
I usually do get a headache with mine but not always. I had one attack, which had me paralysed for several days but absolutely no head pain. It is very hard to understand how it can be a migraine with out a headache isn’t it?
I take Topiramate tablets to control mine and since I started on it I have had far better control over my migraines in general. I get classic migraine with aura as well as the hemiplegic migraine so I do hope the tablets your doctor has prescribed for you are successful at preventing further attacks.
Google hemiplegic migraine and see what you can find out.
All the best,
Belinda
Thank you that is what I have been given to take so fingers crossed
Thank you that is what I have been given to take so fingers crossed
Thank you that is what I have been given to take so fingers crossed
Keep in touch, rachyf, and let us know how you get on. Does this mean that the diagnosis of MS is less likely now and that it is more probable that your neuro symptoms have been caused by the hemiplegic migraines? I do hope so for your sake because although it is nasty and needs careful management it is a far better prognosis than MS.
The Topiramate can cause tingling in your hands, by the way, so if you get that happening don’t freak thinking it is a new neuro symptom. It will just be a side effect of the medication. Did the Drs in the hospital talk to you about gradually increasing the dose of the Topiramate to reach the full dose in a month or so?
Do keep your November appointment still and make sure you get appropriate follow up for your migraines. Hemiplegic migraine does need good management.
All the best,
Belinda
Hi Rachyf,
glad things went so well, fingers crossed the meds sort this out for you,
Take care,
Sara
Glad Belinda could tell you more about this Rachyf. Fingers crossed that you will see an improvement in your symptoms very soon. Teresa xx
I am talking 25 for A week then 50 after that I have tingling in hands for ages anyway and numbness. And speech problem and movement problem so don’t think I will. Notice the side affects lol just find it strange that when I have these episode I never have headaches although never been this bad before.how long do you think it will take for me to be normal again as it been nearly 2 week and all I read says couple days so over alot already
also thank you everyone for being supportive it is keeping me going
Hi rachyf,
My dose tytrated up from 25 to 50 to 75 to 100 which is what I have been on now for quite a while. I am not sure how long the symptoms from this episode will last for. Sometimes they can hang around for a while. I have had the weakness last for a couple of months from a bad hemiplegic migraine and had neuro-physiotherapy to help it recover. And other times the symptoms have disappeared a within a few days. Really hard to predict. But November is a long way a way so if you are concerned can you see your GP to get the appointment brought forward in light of this episode?
The fact that you also have the speech problems and movement problems seperate from the migranes along with the numb hands sounds a bit like me. I do hope you aren’t a mixed bag with MS as well. All the more reason to keep that follow up appointment. Complicated people like us who are greedy and have more than their fair share of neuro problems need excellent follow up and neuro management.
Feel free to PM me too if you want to ask more questions.
Hugs,
Belinda