I havent been on here for a long time, dont know if anyone will remember me but hi to you all.
I have been struggling a long with my MS its had its ups and downs like you are all aware how it goes. I am abit worried about he DLA change and i didnt know much about it so i thought this was the best place to come and find out.
I have higher rate indefinite have been getting it for a long time now well since 2004. I really rely on the moeny and the car and feel sick with worry to whats going to happen, I am sure peole have posted about this before, but i havent seen any other posts so i am asking for your help.
any info that you may have i would be so happy to hear about.
Hi Niyra There are so many of us in the same boat and it’s such a daunting thing for us all. My advice as I’m sure many others will agree is to look/join www.benefitsandwork.co.uk there is a small fee of just under £20 a year to subscribe but I can assure you it is worth it’s weight in gold. It has nothing to do with DWP or the government. Hope this helps x
I’m in a similar position - high rate mobility & middle rate care (indefinitely) and am reliant on having the car. The stat I heard about making appeals against ATOS decisions is that something like 70 or 80% of people win their appeal if they make their appeal with the support of something like Citizens Advice Bureau.
I’m not sure when us ‘indefinites’ are due to be re-assessed, but it may be worth keeping a diary of things like having falls or incontinence accidents to use when being re-assessed. I’m going to record my interview whenever it happens too, in case they put down inaccurate information on the form - that way there’ll be an accurate record of what was said.
It’s unnerving, but I know that worrying about it is only going to make things worse - practicing meditation or yoga may be helpful to keep you stress free.