Ironically, the steroids I was given have had the best effect on my tummy! They told me to take loperamide on my first visit… I asked to be referred back when I lost more weight and didn’t think the loperamide was being very helpful. I had a colonoscopy in January (only after the consultant agreed my weight loss was not consistent with IBS), the doctor that did the procedure wrote that I had Crohns disease, due to the inflammation/ulcers on my terminal illeum. The gastroenterologist said no, nothing else to back it up, it’s just IBS.He sent me for an MRI of my small intestine and then just booked me an appointment for a dim and distant date! That MRI got me a referral to urology - you can imagine how fed up I’ve been with the hospital!
When I was told about MS (I’ll be honest, I had very limited knowledge!) I was upset and then delighted in a weird kind of way that I was given steroids (which are the same ones used for Crohns said the booklet) - I’ve had far less tummy upset and gained about 9lbs - that still puts me at least half a stone under what I’d call a healthy weight but it’s an improvement
Ask your doctor for a referral and start a diary. Seriously, they ask a lot of questions (apparently 3 times a day is within tolerance!), put on the spot I said 3… and two days later was despairing at why I’d said that after my 5th!
I was put on the codeine phosphate by one GP early on and that was terrible, I was really accident prone on it and couldn’t really remember… well, most things really.