I was only diagnosed ~18mths ago, so in the grand scheme of things I probably still know so little. However, I have learned so much over this last year - and other recently diagnosed MS-sufferers might be interested in sharing the journey that I’ve been on:
hi EJ
your writing is very good.
i recognise a lot of what you wrote.
i breezily announced that i have ms, told my sister to stop looking so worried and i’m not a dead woman walking.
i love looking at the sky, it’s always changing.
it’s moody - glowering
got to stop now because my brain hurts with thinking
carole x
That was great to read EJ. I’m was only diagnosed in April but have probably had it for 20 years. The double vision that lead to my diagnosis has gone and I’m left with, well, nothing apart from the tiredness I’ve had for years. Apart from some random numbness 10 yrs ago, there’s been nothing else and in reality, I feel like a fraud. Yes, I’m lucky but yes, I’m likely to have more problems in the future. I’ve managed to get to 49 in blissful ignorance, but I feel guilty at my lack of problems! It’s such a devastating illness but I suppose I’m the lucky one, for now; the sword of Damocles is hanging over my head.
Julia xx
really is a very good read.
I do love your attitude and your love of life despite ms. I do agree that we have much to be grateful for, I am personally grateful to live as best I can with this. I went down the cathiter route recently but it’s merely a tool for us to live the best life we can.
however you write it better than i ever could so thank you x