Well yesterday was diagnosis day that i have relapse and remission MS, its mild and last tijme and this time mainly effected my eye movements so double bvbision has bbeen an issue in both cases but this time its not as severe. Ive taken the news quite well as has my wife as the first episode was 2009 and the neurologist had said then that if it happensa again then it will be diagnosed as MS. Sp 2-6 weeks ago it started but doble vision 2 weeks ago anyway. I was aborad at work so came off the rig early and managed to get the MRI or brain completed with tyhem paying although im agency now so i will be pating for the neurologist yesterday at some point. Anyway this week ahead is all about finding out what coverage we have opn the house for critical illness and since i started the dose of steroids yesterday for 5 days im hoping my eyes keep getting better and return to nromal as the did the first time. I feel that i have my mood in a good place for this as i had read some CBT books afetr loosing my father 3 years ago and a slight bout of depression then. “It is what it is” seems to be my new saying!!! and i stand by it. i know i will have some down days but im ready at the minute to face it head on. The houee and material things are the next things to be found out about and my eye sight also so oly time will let us know how those both turn out. Ive not driven or cycled since the double vision and im no dope so will take both easy. I have a feeling so many people will chip in with their 2 penneth worth and thats fine as there will be some usefull information but all i ask is that dont start of thibnking that everyione knows nothing and cant handle things, just support can be helpfull. sicne my farther died and i first thought i might have MS my whole outlook on likfe has changed and i very much call a spade a spade these days and work on the theory that life is to short to muck about, i used to shy away from confrontation but now im more comfortable to face it head on as quite often its the other persons problem not mine, MS is a disease but i will have to deal with it what ever way feels right and thats where otehr peoples experience is envaluable.
Anyway thats me the new MS dude.
Im a very keep racing cyclist and do plan to carry out some event to raise funds, but i must admit im not into any find raising that stipultates to me that i must raise a minimum amount to enter. the charity gets what it gets from what i raise. I did an evert in 2010 for prostate cancer and managed about £7000 with company matching so that wasnt too bad but dont tell me what i need to raise. i will be off dong it my way!!
anyay good luck to all else who deal with MS daily, mine is luckily mild so far.
“Is it what it is” is a pretty good saying and I hope it continues to be mild, but you seem like the kind of guy who will deal with it, if and when it decides to change its mind, and that can only be a good thing.
As far as the double vision goes, do ask see if your optician can help with prisms - they can make a big difference if the steroids don’t do the trick.
One word of warning: I know you’ve been through tough times before, but the post diagnosis emotional rollercoaster can catch one by surprise so don’t beat yourself up if you start to feel less “sorted” about the whole MS thing.
You do have a great attitude to having MS and seem well gened up on the symptoms.
I hope the house insurance pays out and that`s one less thing to worry about.
As Karen says, you may feel sorted now and ready to deal with whatever happens, but there could be times when it`s all just too much and you dont cope as well.
These feelings may come and go…keep chatting here and we`ll do our best to support you.
Welcome from me as well. Like you, I had been sent on my way to get on with my life when the double vision started and that was that for dx. I well remember that sinking feeling when I was still trying to persuade myself that I was imagining things, but was fast running out of excuses! Ah well. As you say, it is as it is. Life goes on.
Thanks for the note Alison, just to clear up, as your note reads like you are having a slight pop at me?, im not in denial or imagining anything, im just enjoying not being completely down at the minute. Ive already found things out this week about house critical illness that wasnt the best of news and im just trying to deal with it. Also getting back to work in the offshore indutry is not straight forward either.
Regarding the fundraising im finding it a bit frustrating that the UK MS society have nothing with MS cycling apparell and even trying to get a silicone rubber wrist band is nigh on impossible compared to the US (come on we are trying to raise awareness are we not!!!) ! if anyone has any suggestions im open to hearing them?
Thanks for the note Alison, just to clear up, as your note reads like you are having a slight pop at me?, im not in denial or imagining anything, im just enjoying not being completely down at the minute. Ive already found things out this week about house critical illness that wasnt the best of news and im just trying to deal with it. Also getting back to work in the offshore indutry is not straight forward either.
Regarding the fundraising im finding it a bit frustrating that the UK MS society have nothing with MS cycling apparell and even trying to get a silicone rubber wrist band is nigh on impossible compared to the US (come on we are trying to raise awareness are we not!!!) ! if anyone has any suggestions im open to hearing them?
Oh dear, I am really sorry that I left you with that impression - that was not my intention at all. No, I was just being a bit self-indulgently maudlin/nostalgic about remembering me in 1999, standing in the Ladies loos at work and fixing my eyes on the tiles above the basins and counting them and trying to convince myself that they looked normal (they didn’t). I am very sorry to have given the impression that I thought that you were in denial (I do not think that) - I was just remembering that I was sort of, but not really - knowing but not knowing, if you see what I mean. I am very sorry if my clumsily worded post felt unwelcoming.
No it’s all cool Alison ,Please don’t worry now you’ve cleared that up. Ive still got some shit to hear yet but I’m not going to sit hear expecting to all to be bad as there’s no point. Plenty of time for bad news when it happens without worrying to much about it. I will enjoy the decent times cause im sure there are worse to come… Now for some good news regarding the fund raising kits?
