I’ve just had the most intensely painful and longest lasting electric shock running from my neck to my left hand. I’ve had them before but they’ve only lasted a couple of seconds. This one lasted about a minute, although it seemed a lot, lot longer and as usual, it was so painful I couldn’t call out. That’s all I could do was cry ouch and I noticed that throughout, I couldn’t move. I. went to see my gp about a month ago about the spasms that have been increasing in frequency and intensity. She put me on 3 x 100 mg daily of gabapentin, which after two weeks, didn’t touch the spasms. So, she went through my paper records and put me back on baclofen 10mg x twice daily. I was previously on baclofen about 12 years ago, but then taken off it for some reason or other.
Anyway, to get to the point, while I was there, I asked what the initial thoughts of the neurology tests were on my symptoms. My gp told me that initially they thought it was ms, but when the MRI scan came back with no lesions and I had raised PROTEIN (I think that’s right) levels of the lumber puncture, also delayed response time from the optical tests, they couldn’t confirm categorically, so it was defined as undiagnosed neurological causes. That was 1993. I was discharged from routine appointments with the neurologist in 1999 with the closing comment that if things changed to get in touch. Since my gp has been treating me as if I was diagnosed with ms, I haven’t pushed for a proper diagnosis and it’s only now that I’ve discovered that pain is now classified as a symptom. Unfortunately for me, I just put up and shut up. Over the years as symptoms changed, I’ve developed coping methods such as sitting on my legs to dull the toothache in them, this was my constant companion. Also, after I reported initially to the gp about the various spasms in my arms, the excruciating electric shock that starts in your head where you say ouch and its gone and been told that’s all part of ms!! I haven’t been diagnosed with ms and by the sound of it I’m not going to unless I push, so after this painfully episode, I’ve an appointment with my gp on Friday and I’m asking to be referred to the neurologist. Sorry for the rant, I just need to se it down in black and white so it doesn’t sound like a stupid question. Thanks for listening and I just wish I had believed in myself long ago. You just think it’s all in your head or you’re blowing everything out of proportion.