I have just registered so that I can post and perhaps get some advice/views, however now that I am finally here I don’t really know where to begin.
It’s hard for me to recall exactly when I started to think that I may have MS, as I have had a LOT of symptoms arrive all of a sudden over the last few months but something that sticks out vividly for me is the first time I felt that ‘electric shock’ type feeling. I was on the tube, when I suddenly felt this most excruciating shock pain in my left shoulder/neck - I actually thought that I had been stung by a bee or wasp. The pain was over and gone within seconds. Then it started to happen more regularly - along with periods of numbness in my toes, tingling in various parts of my body, and a sort of ‘crackling’ feeling under my skin. I have also more recently been getting central chest pains.
I am a (just turned) 36 year old female with no previous medical history to speak of, apart from a brief period of sciatica (think this was due to my job in the ambulance service) and also twitches/jerks which I have had for years and years. I had investigations for these back in 2015/16 where I had an MRI scan of the brain and an EEG (and a sleep deprived EEG). I wouldn’t say that the results were completely normal, however I remember reading that there were no lesions on the scan, but that the EEG showed an insignificant abnormality “the origin of which is unknown” - I still remember those words - anyhow, I was discharged as the neurologist said that I had myoclonic jerks which are completely harmless…I didn’t think MS back then as I didn’t know what it was - and I wasn’t concerned once the neurologist discharged me and said these were normal, but now, with all of these other symptoms I cannot help but think that this is the start of MS. I have been to my GP (I have since relocated to a different part of the country) and she has referred me to neurology but I know that this is going to take months and months before I will be any clearer, and try as I might, I am thinking about it every single day. The symptoms not only hurt (the shock type pains more so) but they confuse and upset me. I am very active and love hiking and the outdoors and cannot help but think worst case and what might happen to my body next. Sometimes when I walk I feel that my knee ‘drops’ ever so slightly. I am overthinking everything.
I am not expecting anyone to be able to make me feel better, I guess I hesitated in posting here for the longest time as I wasn’t sure what I would gain, but I think that even typing this is getting it off my chest a little, and releasing some of the emotions I feel every day right now.
Thank you for reading.