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Decisions! Decisions!

Hi everyone, hope you are all fine,

Moving in a fortnight so have started packing up house.

Thought I would sort out clothes to pack, I have got piles everywhere, some for storage, some to go to the rented house, some for charity, some for bin and a big pile that I might keep but not sure yet. Confused? Well I am.

Thing is this is the same clothes that I had sorted through a couple of months ago and thought just had to be taken out and packed.

Now I am tired and really can’t be bothered.

One thing is certain, I WON’T be moving again.

Time for a cup of tea, my daughter and baby grandson are due any moment and they are far more important.

Mags xx

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We’re in a similar state here, Mags, except we’re staying put. Builders in next Monday, rooms to clear, decisions to be made. It’s very stressful, isn’t it?

I’ve booked three nights respite care in a local care home so the lads can put a new steel beam in at the top of the staircase, because there’s no way I’ll be able to shimmy past a couple of Acro props.

Al together now- WAAAHHHH!!!

Kev

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[quote=“kevadams”]

We’re in a similar state here, Mags, except we’re staying put. Builders in next Monday, rooms to clear, decisions to be made. It’s very stressful, isn’t it?

I’ve booked three nights respite care in a local care home so the lads can put a new steel beam in at the top of the staircase, because there’s no way I’ll be able to shimmy past a couple of Acro props.

Al together now- WAAAHHHH!!!

Kev

[/quote] I don’t know about you Kev but I think it would be better if I focused on one thing at a time but my mind seems to jump from one task to another and then back again until I feel like a wreck. Good luck with the respite at least you will be out of the mess for a while and it will soon pass.

Mags xx

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If you haven’t worn it in a year you probably never will, be brutal then start saving for a new wardrobe

Good luck with the move Mags it must be very stressful to do it all at once. I was fortunate in that I sold my house, put everything in storage, then moved in with my mum till I found the Bungalow I wanted.

Hope it all goes well, you too Kev.

Jan x

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Good luck to both of you. We’re all here if you need a chat (or moan or cry). We’ve all done it and can sympathise. I’ve had at least 40 addresses and I’m only 45 and been in this house for 13 years, I was an army brat before marrying a contractor. Been happily divorced now for 16 years so grew deep roots.

Cath xx

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know just how you feel…moving is so stressful,i have just been to see a bungalow that ive had my eye on for ages,and online it looked really nice,but as soon as i got thru the door i just knew it wasnt for us,as nice as it was,it smelt of damp as soon as we walked in,so all the way round i just couldnt stop smelling it… the area was nice,the garden was lovely… but it was overpriced too and like i say it wasnt for us,so now i dont know what to do,theres been quite a bit of interest in ours too…but i just cant seem to find anything we like…so now im thinking maybe i should stay where i am…good luck with the move,hope it all goes ok for you.

J x

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Hi Mags, I noticed you said that your mind jumps from one task to another until you are a wreck. I don’t know whether you know, but this is very MS!

I remember reading about it a few years ago and thought ‘blimey that’s just what I do all the time’!

Not sure if this would make things better or worse… but when I moved in here I got so tired of sorting through stuff that I just ended up packing it all and sorting through it when I got here. I mean really it doesn’t make any difference which way you do it… but at least once you are in the new house you don’t have the same level of stress.

Mrs J… have you thought of putting an ad in local paper? Sometimes people are thinking of selling but haven’t put their house on the market. I like to watch those property shows (I know…get a life!) and they say that can work well. Or even to put flyers round door to door in your desired area.

I’m still waiting to hear if I’m going to get the vacant flat I’m after… seems to be going on forever.

Love to all,

Pat xx

H Pat, that is interesting, I had no idea that is connected to ms, but that is so what I am like. I try to do one task, and my mind flits to another, then another until I have no concentration at all, and get so frustrated with it, and normally end up in tears.

Going from a very organised person to what I am now is depressing, but like I said I had not connected that to ms, so I am so glad you mentioned it to Mags. I shall now stop blaming my age!!!

Hope the flat you are after comes up trumps, is it in sheltered like you are now, and presumably closer to your family.

Pam x

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Hi Pam, oooh I do it all the time. Dishes half done. Bed half made. Email half finished. It’s a ‘half done’ hell. But yes it is MS and it’s to do with cognitive function (or disfunction as the case may be!).

Yep it’s another sheltered scheme… 10 mins from my mum and sister who live close to each other. It’s a really nice scheme so fingers crossed. I wish now I’d gone into sheltered over there nearly 5 years ago when I moved in here. At that time my MS wasn’t so bad and I was determined to stay in the area I’d been living in and close to friends. All of those friends have dropped apart from one! Nothing like a disability to send so-called friends out of your life… and then you realise the importance of family. Well I’m very lucky. My family are incredibly supportive… and I want to spend more time with Mum who’s 87.

Thanks Pam and hope you’re doing ok.

Pat xx

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I find it hard to make decisions, at the moment im stressing thinking I DO want to move, then i change my mind to NO i DONT want to move, im driving myself mad,

i wish i could just make a decision one way or the other,but at least i knew i didnt want the house we went to see last night,so i suppose thats somert i made my mind up over lol… Pat i hope you hear good news about your move…

J x

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Hi Pat

Sounds an awful thing to say, but I am so glad its not just me, cos you begin to think you’re going doolally, and knowing that there are others experiencing the same, somehow makes you accept it easier.

I also so know what you mean about so called friends, I had lots at work who don’t me they would drop in and say hello, well they must have dropped off somewhere else, cos they never came here. Its so true, you find out who your real friends are.

I suppose hindsight is wonderful when it comes to having ms, I think a lot of us would have made different decisions had we known. The one really good decision we made was moving to a bungalow years ago.

The flat you want sounds fantastic, hope it all works out for you to have it, being close to family has got to be beneficial, my only sister has lived in Oz for over forty years! What I would give to have her close, but hey, that can’t happen, so we have to accept it.

Today has been quite sunny here.

Pam x

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Hi Mrs J and Pam,

I have developed in the last few years the complete inability to focus on doing one thing to completion. Making decisions is so difficult, some are almost impossible!

Like yourself Pam I’m so glad I’m not alone, I’m so glad I’m not just going mad!

No one needs to worry about fair weather friends when we have friends here who totally understand what’s going on when you want to talk.

Hugs to all

Polly xxx

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Hi All

I am so glad this is not just me. I honestly thought I had mental health issues.

Considering I used to be super organised this has hit me hard.

I know it’s my eldest daughters birthday this weekend but I haven’t done anything about it yet. It’s not so long ago I would have had her card and present organised ages ago. Yet it is on my mind from the time I wake up but have done nothing about it. Weird!!

i shouldn’t be relieved its ms but I am.

i know about the tears Pam been there done that more times than I care to remember.

What is wrong with this forum? I am replying in a grey area with no boundaries. Weird!!

Mags xx

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Hi all

Reading these comments is what keeps me sane, thank goodness for this forum and all the lovely friends, thank you everyone.

Today the comment box is white, but I have no edges.

Pam x

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Oh I get the tears with it too. Everything seems so overwhelming when doing something that at one time I could have done with my eyes closed. I just get the most pathetic crying thing. Just can’t cope at all. Anything that goes slightly wrong is the same.

It does help to remember it’s MS though. Cognitive problems are very sneaky. It’s easy to recognise the biggies like not being able to add something up in your head, but the little sneaky ones are the worse… that awful thing of doing one thing and then thinking of something else that needs doing so starting that and then forgetting about the other thing you started… like your brain is a whirlpool.

Always remember, or try to remember, that it’s cognitive probs from MS and you are not going mad!!!

Anyone else noticed that if you put a smilie on you can’t type after the smilie… so it has to go on the end?

Love to all,

Pat xx (this smilie was meant to go after ‘like your brain is a whirlpool’)

Nope can’t say I have type type type.

Kev xx

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Hi Mags, yes I get it going on in my dreams as well. Very vivid busy dreams that are exhausting.

Though I will say that it has improved a bit since I’ve been doing mindfulness meditation. I promise you I don’t sit cross legged (!) or burn incense or anything. But I do this for 5 mins every day… and when I’m in a whirlpool I stop and do it again.

Basic 5 min Mindfulness:

  1. Sit in comfy position… somewhere quiet where hopefully you won’t be disturbed.
  2. Close your eyes and relax your body.
  3. Concentrate on one part of your body where you can be aware of your breathing. Either the rise and fall of your tummy or the feeling of breath going in your mouth or nostrils.
  4. Focus your attention on your breathing.
  5. Your mind WILL wander. Everybody’s does. It’s like a monkey running this way and that.
  6. When you become aware that your mind has wandered, gently bring your attention back to your breathing.
  7. Breath naturally. Don’t try to breath deeply or anything.

That is basic mindfulness meditation… and I tell you I personally find it a lifesaver!

Pat x Ok Kev I’m going to try another smilie IF nothing is typed after it it’s because it wouldn’t let me type

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I am going to try that Pat, but always find it hard to relax, always been that way for me, in fact when I went to anti natal classes (jeez that’s going back yonks) she used to say I survived on nervous energy!!

But, as I said, I will try anything at the moment.

Forgot to try Smiley’s mid flow, sorry.

Pam x

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i am just the same Pam, i have never been able to relax EVER,i am my own worst enemy…

J x

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