Hi everyone, I am new to this forum.
I was diagnosed with MS 13 years ago and have been very fortunate as I have kept very well and I am not on any medication and never have been. The only supplement I take is VitD3, 4,000 units a day as recommended by Professor Ebers who studied VitD3 and MS for years (he has now retired).
I have postponed my Covid vaccine as I am as anxious about getting it as I am about getting Covid. I am aware of the serious implications of Covid disease, however I have spoken to and have read about a fair amount of people with MS who have had the vaccine and have had really bad side effects - flaring old symptoms and the start of new ones which have all lasted months. Due to the fact that I have been well for so long, the last thing I want to do is trigger any symptoms from the vaccine but I am also aware that if I get Covid it can also trigger symptoms and cause death.
I am due to get my vaccine on the 12th July and I am thinking of postponing it again until there is more data on the effects of the vaccine on people with MS or until they find more drugs that can stop Covid in its tracks and stop long Covid or death. At the moment all the main health organisations around the world say that you can get the vaccine but there is no data available on the safety of it in relation to autoimmune disease.
I was hoping that I could find out if people have had the vaccine, what one they had and what were the side effects. If I go ahead I am scheduled to get the Psyzer one as that seems to have less side effects than Astrazeneka although I do feel that we are guinea pigs as far as MRNA vaccines go but I do understand the urgency of getting vaccines out there. I am certainly not an anti vaxxer but the last time I had a vaccine was when I was 15. I have never had a flu vaccine and have never had the flu thankfully.
Many thanks for reading this