hi everyone ,
being undiagnosed is difficult enough,but to hear your only hope with your neuro think his diagnoses to be ,maybe you are somatizing ,what would you think,what would be your thoughts,prevous back consultant,beleived i have fibromyalgia,yet i have not been discharged,and my psychologist,says maybe in five years who can say with a diagnoses,i feel so screwed up with it all.
my gp i am sure has helped with my neuro,i really believe he doesn’t believe in ms,he is abrubt and short with me,but last chat i really stood up to him,and he was offering me evevything,scans mris eveything,itold him i felt like complaining aqbout previous neuro,as he said he would make sure i would never be able togo back,because i had asked if i could have a lumber punture,my second neuro had offered me,he said it would make me very ill,and said i had no brain rot ,i am feeling ,nothing but despair,and i am really going to dig deep now and have my say,in as a diplomatic way as possiable.
my present neuro whom i had ,so much faith in,has crytasied me for writing my symptoms,i wrote a diary of five years,but i am now 56 years,and have been suffering for 39 years years since i was sevevnteen .i feel ,he has chosen to try and find things to justyfy a weak diagnoses,i went for a lumbar punture through him,and at the time my back was painful and weak,beacuse i said it hurt for 2/3 weeks,he said i was over empasizing my getting over it,this was my first neuros’ doing,have put this on my notes,when i saw a consulatant gp/rheumy,he saw me for 16 mins and came out,my first neuro didn’t know what to do with me,then wanted to know my history personal life,then came out with ,when we do’nt know what is wrong with a patient we term it as somataform,he was short,didn’t listen,said did i really expect to get rid of my facial pain,i have suffered it since sevevteen,it got worse nearly 10 years ago after i suffered glandular fever,and all my problems gradualy got worse.
sorry to have rattled on but i atlowest depsair and feel i need to battle on and stand up for myself and fight back for i truly believe in myself,what evr comes of it all,at least i will have said what i want to,and give them food for thought,and answer their findings,with my own thoughts,after all it is my body ,i am the one living living with it ,day in,day out.,i just cannot beleive what i am reading and hearing at times with them.
sorry buddies,i know by the time you have reached these last few words you are as exauseted as i am writting it.thankyou for your thoughts,on copies of letters and mri reports., it really means alot to me,i see my gp monday,two weeks after i really let rip,about my neuro letter,i have gone up a dose of gabapentin,i think i need a bit extra with what i am going to ask.