Hi I’m new to this but after seeing my gp again yesterday and leaving him feeling as thow I’m mad I’ve decided to write here for some advice I have not been diagnosed or as any medical official mentioned it my symptoms started about 3 yrs ago where I was so tired and had lower back pain and generally just felt ill my gp treated me for water infections for 12 months in fact 8 courses of antibiotics where prescribed in that year ! He sent me for a kidney scan which came back clear Then had lower back MRI last march which showed 3 prolapsed discs But my symptoms are just not lower back pain as I’ve tried to tell him but he seems to just shrug them off and tell me he doesn’t no ! My symptoms are : Pain all over my body Heavy limbs Pins n needles Fatigue (really bad ) Vibrating feeling all over my body I got a lot of twitches esp eye lid Last year I lost vision in half my eye which came back a couple of days lAter My short term memory is getting worse It’s an effect at times to talk speech seems slowed sometimes I have seen an orthopaedic surgeon who is gonna be injecting me with nerve blockers but I no there is more to me than just a bad back Any advice would be great x
Hi. I am in similar position and its really not nice when you are not taken seriously. I have similar symptoms though only ever had mri of brain and neck which was ok i am told. Have you been keeping a diary of symptoms? Is there another gp you can see? I found a nice gp in my practice and she has referred me back to neurology for another look after another gp said its in my head. As if uti is figment of imagination lol Good luck and stay on forum as lots of advice available x
Thanks it feels so good to hear I’m not alone or crazy which is how my gp makes me feel I have called my surgery today to ask for a 2nd opinion and have been told to go into my local walk in centre which is what I’m going to do later on today . I’m fed up of feeling like this and think it may help me if someone would just take me serious rather than look at me like I’m mad Do u think I should mention that I’ve been on this site and seem to have a lot of symptoms that fit with ms … Or not ?
I feel for you as I have been to see my GP today & she just laughed me off.Have been getting double vision, loss of balance, really painful leg spasms, tiredness, heavy arms & quite a few more symtoms. First she told me that she knows it is not MS as MS is not painful. Then she said I will refer you to a neurologist but don’t know how long it will take for an appointment to come through & has given me a script for gabapentin. I feel like I have wasted her time & that she now thinks I am some sort of crackpot! I too feel so alone like you & don’t know what to do. I also would be grateful for any advice. Thanks. xx
It’s awful that we are made to feel like this … Well I went to walk in centre to be told they cannot give 2nd opinions as they have no access to my records and that my go surgery was wrong to send me there 
I have just got off the phone to the practise manager of my surgery and told her this and how the gp (which is her husband ) treated me and Mage me feel on Wednesday , she has booked me into see him again on Monday and is coming in with me she has also booked me for blood tests as my doc said my last lot was normal but she said I hadn’t had my bloods done since 2012 !! Amazing I never complain and always just plod on but I really have had enough now I’m not an attention seeker as he seems to think I work full time I’m a single parent to 3 children and I no my body and just want to find out what the hell is wrong with me Thanks for your replays hope you get some help some x
P.s I’m starting to keep a diary as think this is the best advice I’ve had x
Keeping a diary was the best thing I did, I made a table of symptoms,frequency,effects and management from it, I had my first appt with ms team yesterday and gave them a copy, I felt a bit silly, not knowing if they would think it silly, but they were impressed and said it! O.T and MS nurse asked if they could keep a copy, obviously I agreed, my g.p has also been given a copy, I have signed and dated the info, and will review it every 6-12 months or as and when needed. I was positively proud of myself after the appt, I didn’t forget to talk about anything. Xx
Depression and stress seems to be the answer for most g.p’s , I took myself off to A&E 6 months ago, I had all the symptoms in one go and was being sick. A&E checked me for a stroke,then sent me to the assessment unit, a neurologist came to see me and said as an appointment had been made for a weeks time with neurology at the specialist clinic I could go home. To be honest I think going to A&E would have pushed things along if I didn’t have the appt. Sometimes we have to do what we wouldn’t ordinarily do to get heard.xx
Hi I know exactly how you feel, I have had many gp appointment and come out feeling like I am crazy. I was diagnosed with depression about 4 years ago which I now know was a relapse. I kept being persistent with the drs who kept saying it was the depression. Then I saw a different dr one day and he decided that I needed a referral to ENT as dizziness wasn’t improving. They gave me test after test, one of there procedures made me so ill I was kept there over an hour being constantly monitored. They decided to send me to a neurology appointment and was then diagnosed with MS when the neurologist put all my symptoms together with MRI and lumbar puncture. All I can say is make sure you keep a list of everything that happens and keep going at the drs. It is horrible being in a position when you are made to feel like you are crazy and making it up. Just hang in there. Barney
Hiya,
What I am going to suggest is not right, is perfectly legal and if you can afford it unfortunately is just the way of the world where money talks; go private. No referral necessary; cost about £200 for initial appointment but make sure all further tests; drugs; hospital stays are on the NHS.
One thing though you don’t want a bad Neurologist so I would ask on Everyday Living if anyone could recommend a one in your area.
G
Thanks for the support it does make u a feel a bit better to no that I’m not alone on this 
I’m def gonna stick with the diary idea Not sure if I could afford to go private but it’s something I could maybe look into the future if need be Thanks to u all x
Hello Cody, I am Dx with SPMS and my suggestion to you is to visit your gp again and ask him/her to refer you to a neurologist, if they say there is no reason tell them straight you are not happy as you have so many symptoms and feel so ill you would really like a definite Dx. Even go so far and ask if ,you could have a MRI of head, neck and spine which would give a true picture. Be strong and good luck. Janet x
Hi just a little thank you to the ones who listened to me moan I’ve just got back from Gp and have an appointment to see a neurologist 3 weeks tmrw, so fingers crossed it will at least start the ball rolling to find out what’s up with me Xx P.s took a list of my symptoms with me which was a great idea
Great news Cody01! Xx
Great news Cody01! Xx
Good for you Cody, well done. The time will pass quickly now. Janet x.
Well just an update as poss could be good news I’m thinking … Had my blood test on Wednesday and GPS have just called me to say the doc wants to see me Monday morning I no if blood test comes back all fine then receptionist always tells you over the phone … I no it sounds strange but if they have found something in my blood could it mean I’m less likely to be suffering symptoms of ms ( please excuse me if I’m not correct I am just assuming ) ?
Hi Cody, There’s obviously something wrong with your blood results. However I think that you are over analysing it. This is quite understandable. However you have lived with the same blood for ages and are how you are I.e surviving. All you can do is wait until Monday and see your GP to find out what the problem is. So please stop worrying as it won’t change anything just cause you stress. Good luck Min xx
High cholesterol was the only thing found in my bloods … Everything else was spot on x