I’m intrigued to know people’s thoughts. Some of you might know i am being investigated for MS. I just have a couple of questions. So the tingling, pins and needles etc come and go. BUT the whole of the right side of my body has lost sensation, this started with just my arm but has now travelled down my leg and in the neuro exam the consultant said it’s the whole of my right side. The other thing that is constant is the fatigue. I am never refreshed, no matter how much sleep I get. Would these symptoms be constant if it was MS?
Hi i;m not dx either but I have lost feeling in most of left side now. And faigue, yes, extreme right now, always so damn tired. These sound very much like things other people here have experienced too.
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I know people have experienced them but I thought if was ms would it not come and go? That’s the part I don’t get. I hope you get some answers soon xx
It depends which type of MS you have, I have primary progressive which does not come and go, once I get a symptom it varies in intensity but it is always there.
Have a look on the main part of the website: there is lots of information there about the range of symptoms people with MS experience and about the different types of MS.
Thanks Mitzi I’m baffled to be honest! I was once convinced it could be MS but now I’ve heard a neuro say it is a real possibility I’m convinced its not!
My first two relapses were each side, one after the other, corresponding to brain lesions. I also went numb down one side. They both lasted months so did not come and go all the time, just came and partially went once if that makes sense, ie they slowly improved but I have been left with residual symptoms. I have now been diagnosed with relapsing remitting MS, and have bad fatigue too.
yeah it could be(hope its not though). My first symptom was numbness, but it was from the waist down, not specific to one side
I have rrms and before i was told i had it i lost feeling down the left hand side affecting my arm and leg as though it was a stroke. The doctor and ms nurse would not tell me that i had it until a brain scan and a second relapse, then hayho that showed up what they were thinking and thats were i am today 5 years later. The fitigue is one major part of my life that will not go away, tied almost all the time, feel like i could sleep on a clothes line most of the time, pins and needles come and go but nothing major think the drug Gilenya im on works as it should.
Thank you all for your replies. So the fatigue can be pretty much constant like mine then? I’m tired constantly and it effects my life ina big way. Rarely go out anymore, just need to sleep as much as possible. I am still working though so guess that’s a good thing. I’ve just had my brain and spinal MRI yesterday so awaiting those results. Obviously I’m hoping it isn’t MS but some answers would be good as I’ve been struggling on for 3 years now x
Hi I am waiting for a dx too, had ON in Dec, then L’Hermitte’s electric shock in Jan for 2 weeks, but since then have had constant but varying sensory issues - burning and icy water drips, buzzing, felling like deep heat down back - all happening when my head moves so seemingly still linked to lhermittes. Sensory symptoms seem to get worst when the fatigue is bad, but also my ON pain comes back too. Doesn’t make any sense to me at all, and doesn’t seem to be what people talk about when they say relapsing and remitting, so like you hoping it is something else! Good luck. Leah 